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Old 08-20-2015, 10:40 PM #1
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Well, I've been diagnosed with Vulvodynia. Makes sense, due to my recent history with TBI/PCS/Occipital Neuralgia. Unfortunately, this diagnosis is leading me to my psychiatrist anyway.

My psychiatrist has been with me since my TBI when anxiety was crippling, and luckily he'll know about vulvodynia and will prescribe me the amitrypline that I need during this current time.

The pain is immense, mostly when I sit, and as far as the doctor says, it looks normal, but things aren't normal as he says or else I wouldn't be in his office. He prescribed me a steroid cream for the meantime and removed my IUD to prevent further complications.

He gave me an understanding of what vulvodynia was, as well as treatment plan and that this pain is normal due to faulty pain signals.

I am now convinced that I will heal now, and I need to take one day at a time, even if it kills me.
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 08-21-2015, 10:03 AM #2
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Heart Self-Compassion during this Challenging Time

Hi Consider,

Congratulations on getting this sorted out.
I am sorry you face yet another challenge.

Vulvodynia is known to be very painful and very frustrating.
I have known of women recovering well.

I hope the steroidal cream is being used as a temporary measure.
Steroids can eventually cause skin thinning and may cause other changes with prolonged use.

Often, an anesthetic (lidocaine) or other pain-relieving topicals are prescribed.

Lots of good information here:
https://www.nva.org/what-is-vulvodynia/

Sounds like you are very comfortable with your psychiatrist.
Vulvodynia can be quite a challenge. You are facing other challenges, as well.

Learning to take life one day at a time can be a challenge, for sure.
It's one of the most helpful lessons I've learned for managing life's ongoing challenges.

I hope you continue to make strides toward full recovery.
Self-compassion may be very helpful to a less stressful healing experience.


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Old 05-28-2017, 03:11 PM #3
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Quote:
Originally Posted by Consider View Post
Well, I've been diagnosed with Vulvodynia. Makes sense, due to my recent history with TBI/PCS/Occipital Neuralgia. Unfortunately, this diagnosis is leading me to my psychiatrist anyway.

My psychiatrist has been with me since my TBI when anxiety was crippling, and luckily he'll know about vulvodynia and will prescribe me the amitrypline that I need during this current time.

The pain is immense, mostly when I sit, and as far as the doctor says, it looks normal, but things aren't normal as he says or else I wouldn't be in his office. He prescribed me a steroid cream for the meantime and removed my IUD to prevent further complications.

He gave me an understanding of what vulvodynia was, as well as treatment plan and that this pain is normal due to faulty pain signals.

I am now convinced that I will heal now, and I need to take one day at a time, even if it kills me.
Hey, I have this too.. I went on ami and lyrica some time ago and then was able to go off them for 1 year and 4 months with no symptoms whatsoever.... I have it again now and back on meds... How have you evolved? I think mine is form years of severe anxiety and stress
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I have...vulval nerve pain
I take...50 mg Elavil/Ami, 150 mg LYRICA
+magnesium oxide (works for me)
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