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HRT and breast cancer

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Old 09-28-2015, 09:34 AM   #11
Diandra
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hi Janie,
forgive me for not reading through your entire post. eye issues.

I had breast cancer, was dx'ed March 2015.

I don't know why you are taking estrogen(my apologies, have not been on forums much lately) but my medical oncologist gave me 3 reasons, potentially, why I got BC and one of them was using HRT for menopause. The other two were being on birth control pills in my younger days and not having had children. I am not really sure why he told because it is moot at this point.

I was stunned when I was told I had breast cancer and if I had my life to live over and know what I know now, if the doc was correct, I would have used another method for birth control and not done HRT.

You are smart to research and take matters into your own hands.
I wish you the best Janie.
Diandra
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janieg (09-28-2015)
Old 09-28-2015, 12:01 PM   #12
caroline2
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Janie, it's BEST to get DHEA levels tested, as from years of reading about it, our levels start to drop at 20 and I've read 30.....so I'd say MOST are deficient in DHEA. Conventional MD's as I said probably don't test DHEA but I'm not sure on that....I don't see conventional MD's, as for me it's beneficial to go out the conventional box for my health maintenance. You could at least ask your doctors about DHEA.

There is a lot of fear out there but there is a lot of deficiencies going on too and conventional doctors don't get those for us...so many do go outside the "normal" medicine world. To address what we're losing with age makes sense to me. C

BTW: There are books written on DHEA and I bought one a long time ago. Written by doctor.
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Old 09-28-2015, 06:30 PM   #13
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Wow, thanks for all this. This is something I've been researching for a long time. It may offer some explanation regarding the mystery of my neuropathy, at least a chunk of it. There are labs that can test for this and many other treatments that may cause more harm than good.

This is one of the labs that offers testing.


http://www.iversongenetics.com/emetab-panel.html

Last edited by February; 09-28-2015 at 07:24 PM.
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Old 09-28-2015, 10:54 PM   #14
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Quote:
Originally Posted by Diandra View Post
hi Janie,
forgive me for not reading through your entire post. eye issues.

I had breast cancer, was dx'ed March 2015.

I don't know why you are taking estrogen(my apologies, have not been on forums much lately) but my medical oncologist gave me 3 reasons, potentially, why I got BC and one of them was using HRT for menopause. The other two were being on birth control pills in my younger days and not having had children. I am not really sure why he told because it is moot at this point.

I was stunned when I was told I had breast cancer and if I had my life to live over and know what I know now, if the doc was correct, I would have used another method for birth control and not done HRT.

You are smart to research and take matters into your own hands.
I wish you the best Janie.
Diandra
Hi Diandra,

Well, I've pretty followed the same road you have.

I was on the BCP for about 20 years and never had children. My neuropathy hit the month after I stopped taking them when I was 52. It may just be coincidence, but between the timing of it and the timing of when I flare badly now, I feel there's a hormonal component to this. Having done a lot of Googling on a possible connection, I see a lot of people saying there certainly can be one, but not much beyond that. To date, no doctor I've seen seems to know anything about it.

I definitely feel like the very strong "buzzing" I sometimes have in the morning accompanied by a racing heart is cortisol levels. That's the only thing that makes sense. It calms down when I get moving in the morning.

The other thing that happened to me is after about 2 or 3 months of being off the pill, my heart went berserk. I started having crazy palpitations to the tune of 1300 in 24 hours when they put a holter on me. I thought it was from the stress of neuropathy. Long story short, it was about this time I wondered about a hormonal cause for my neuropathy, and called my gyn. She prescribed low dose estradiol which did nothing for my neuropathy, but stopped the palpitations within a couple of days.

So I know something is going on hormone-wise...I just don't know what.
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Idiopathic, Full Body, Small Fiber Neuropathy since 11/2013. Symptoms include altered sensation in toes; constant tingling/vibrations in feet and lower legs; intermittent tingling in temples, scalp and face; full body "buzzing" in the morning (suspect mild dehydration); referred sensation in feet cause by touch; occasional bouts with severe cramping in my feet and legs; when flaring, full body burning.

Metabolic issues: FBG -88 A1C - 5.1 with glucose spikes near 300, can't metabolize alcohol, and salt consumption makes my neuropathy 100x worse.

Current treatments:
  • Omega 3's - Fish Oil (2400 mg EPA, 1200mg DHA), 200 mg Magnesium Threonate
  • 5 mg Meribin Biotin for low-normal biotinidase levels.
  • Low carb "back to the farm" diet, lots of water
  • Quell TENS unit, 5% lidocaine patches, magnesium cream, CBD oil
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