Women's Health For women's health topics.


advertisement
Reply
 
Thread Tools Display Modes
Old 07-02-2009, 09:15 PM #11
lbayless lbayless is offline
New Member
 
Join Date: Jul 2009
Location: Peoria, Ill
Posts: 4
10 yr Member
lbayless lbayless is offline
New Member
 
Join Date: Jul 2009
Location: Peoria, Ill
Posts: 4
10 yr Member
Default

I am new to this forum.
I have been diagnosed with Vulvodynia. I went to Iowa City Vulvodynia clinic first and did not get much help. My family doctor tried many medicines and then my gynocologyst removed a fibroid tumor that had added to pain.
I have gotten worse since 2009 and joined the NVA. This is very worthwhile as they have lots of information and assign you a mentor.
I went to Dr. Meltzer in Northbrook Il and he found a rare yeast infection and worked on my Vestibulitus. The skin is better but have burning sore pain which tied me to an ice pack hourly. He then said it is neuropathic pain and recommended a pain clinic with a neuropathic doctor which is now giving me pudental nerve blocks. Yesterday's block seemed to help a bit and I am going to get another one next Wednesday. I have been on Neurotin in the past and may try it again. For now I am going to try Amitriptilyn. Starting a 25 mg and may increase if it does not cause nausea.
Please reply to me.
lbayless
lbay
lbayless is offline   Reply With QuoteReply With Quote

advertisement
Old 07-06-2009, 02:57 PM #12
GanaQ's Avatar
GanaQ GanaQ is offline
new member
 
Join Date: Nov 2008
Posts: 16
15 yr Member
GanaQ GanaQ is offline
new member
GanaQ's Avatar
 
Join Date: Nov 2008
Posts: 16
15 yr Member
Default

Hello Ibayless,

Sorry for not answering before but my husband has been in hospital and.....

I do not know much myself. I have tried Amitriptilyn but it messed up my thyroid meds, so I quit after two weeks - no improvement of the vulvodynia in those two weeks.

The doctor did not find any yeast or other diseases. I was just very very red and sore to the point of not being able to sit or walk. The doctor suggested mental techniques in order to be my own master and cited some books. Frankly, I have no confidence in those, so I have not tried the books. The doctor does not have any other clues.

What I have tried and what has worked to a degree is: a creme/ointment used for cows' tits applied in the vulva area but not inside the vagina. It has cured the red sore vulva, and the skin has returned to normal pink. Inside though is still too sore for anything, and the doctor advised not to apply the creme in there. During my period the vulvodynia flares up, but afterwards it gets back to "normal". It is tolerable now, and I can sit, walk and dance. Sex however is still hurtful inside but possible on the outside if kept short.

What else can I say? I am trying to live with it, being tired of no-one knowing how to help or even disbelieving or explaining away my constant pain as a trick of the mind. I would have thought that a woman doctor would be more forthcoming.

Good luck everyone and have a nice summer!
__________________
GanaQ - living everyday by the grace of God
.

.


Take care and be well!
GanaQ is offline   Reply With QuoteReply With Quote
Old 07-08-2009, 10:35 PM #13
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default

I have suffered from what I think is vulvodynia since I was very young. Every dr I have been to just said either, "Don't know whats wrong with you" or "Oh thats not the worst I've seen"
I do remember being in sooooo much pain(burning itching and pain) I just wanted to die, I was in pain for 24 days out of 28 days of my cycle.
Then I went on the low oxolat diet, and wow what a difference that makes for me, I stay away from all the high oxolate foods, and restrict the medium ones. I also find that about half way through my cycle I have a very irritating discharge, so I use a tampon to stop it irritating me.
http://www.lowoxalate.info/ This is a helpful site,
Kate
__________________


Outside of a dog, a book is a man's best friend.
Inside of a dog, it's too dark to read.
Groucho Marx
redtail is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (07-09-2009)
Old 12-04-2013, 02:35 PM #14
mary jane's Avatar
mary jane mary jane is offline
Junior Member
 
Join Date: Dec 2013
Location: uk
Posts: 47
10 yr Member
mary jane mary jane is offline
Junior Member
mary jane's Avatar
 
Join Date: Dec 2013
Location: uk
Posts: 47
10 yr Member
Default

lbaylets I tried to send you a PM but it's not working??

I have neuropathic vulvodynia as well , on ami 50 mg
did the nerve blocks work for you??
mary jane is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 04:42 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.