Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 10-18-2007, 01:03 PM #1
lostmary's Avatar
lostmary lostmary is offline
Member
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
lostmary lostmary is offline
Member
lostmary's Avatar
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
Grin Got the trial SCS...sooo happy...

I just got my trial scs yesterday. Aside from a really painful back, it is working better than I could have hoped. I just went outside in a pair of shoes and socks and walked around. I even broke acorns with my shoes. I never would have expected such great results. I've already told my doc and the ans rep. that I wanted the perm one. they are going to start the insurance stuff again, and get me on the surgical schedule. AND.....doc said yesterday, that if and when I got the perm. that after about 9-12 monhts, that I should be able to ride my horses again. He did say no jumping, but I don't do that anymore. I'm looking at next Christmas, but still, it may be in my future.

Mary
__________________
There is no future, there is no past, we must make each moment last
lostmary is offline   Reply With QuoteReply With Quote

advertisement
Old 10-18-2007, 01:07 PM #2
InHisHands InHisHands is offline
Member
 
Join Date: Dec 2006
Posts: 808
15 yr Member
InHisHands InHisHands is offline
Member
 
Join Date: Dec 2006
Posts: 808
15 yr Member
Default

Mary,

I AM SO HAPPY FOR YOU!!!!!!!! Praise God. That is so wonderful, may it last forever!

Love you hun!
InHisHands is offline   Reply With QuoteReply With Quote
Old 10-18-2007, 01:59 PM #3
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Default

That is soo wonderful for you , I hope it's keeps doing great.
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 10-18-2007, 02:17 PM #4
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi Mary,

That is such great news. I hope the permanent one does what you want it to.
It's great to have something to look forward to isn't it. With RSD we don't have much in the way of fun but to be able to ride horses again. Every time someone mentions horses on here I really get excited.

I could have horses at my other place but my Dr. says no way. I do hope it happens for you.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 10-18-2007, 04:11 PM #5
sue k sue k is offline
Member
 
Join Date: May 2007
Location: Western MA
Posts: 272
15 yr Member
sue k sue k is offline
Member
 
Join Date: May 2007
Location: Western MA
Posts: 272
15 yr Member
Heart

Hi Mary,
I am so happy for you. The back pain shouldn't last too long. At the time I had mine put in, I was working at the time. They told me that I would be out for 2 weeks, but I was back in just 4 days. Good Luck with it!

Sue K.
sue k is offline   Reply With QuoteReply With Quote
Old 10-18-2007, 04:31 PM #6
frogga's Avatar
frogga frogga is offline
Member
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
frogga frogga is offline
Member
frogga's Avatar
 
Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
Default

Wahey!!! that is so awesome babes!!!! I'm so pleased it worked!!!

Love ya

Frogga xxxxxxxx
frogga is offline   Reply With QuoteReply With Quote
Old 10-18-2007, 11:21 PM #7
Desi's Avatar
Desi Desi is offline
Member
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Desi Desi is offline
Member
Desi's Avatar
 
Join Date: Apr 2007
Location: Ohio
Posts: 941
15 yr Member
Default

Oh Mary, This news is just so exciting!! And ya get to ride your "Beautiful horses" again!! I am so happy that your happy sweetie!! May God bless you and may you continue to get better and better! Much love~Love, Desi
__________________
I Will Always Believe in Poems, Prayers And Promises
Love, Desi
.
Desi is offline   Reply With QuoteReply With Quote
Old 10-19-2007, 12:27 AM #8
wakegirl wakegirl is offline
Member
 
Join Date: Aug 2007
Posts: 119
15 yr Member
wakegirl wakegirl is offline
Member
 
Join Date: Aug 2007
Posts: 119
15 yr Member
Default

HEY MARY
congrats
i hope the scs will help you to like it did me. is the hubby excited that you are not only back but could work in a limited capacity
if you ever need an answer feel free to ask, i will help you.
i found it funy....considering some of the horror
p.ps.
dont forget to input information in a journal or a small. for the first week or ten days for your temp. scs trial pain level in the foot, what you did during the day, what meds you take in at the end of the day (be specific about the program you used, frequency you found worked best why the other two didnt hel
__________________
rsd following a botched epideral for knee surgery 1993
remission from 99-2003 shoulder dislocation 2003
CRPS Type 2 scs (cervicle 2005) (lumbar 2007)
Strong mind Strong body
.
wakegirl is offline   Reply With QuoteReply With Quote
Old 10-19-2007, 02:24 AM #9
tayla4me tayla4me is offline
Member
 
Join Date: Feb 2007
Posts: 486
15 yr Member
tayla4me tayla4me is offline
Member
 
Join Date: Feb 2007
Posts: 486
15 yr Member
Default

Mary,

I am very very happy for you.
It is the positives like yours that give us the strength to keep going.

Keep us in touch with your progress.
Love Tayla
tayla4me is offline   Reply With QuoteReply With Quote
Old 10-19-2007, 05:54 AM #10
ali12's Avatar
ali12 ali12 is offline
Magnate
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Default

Hi there,
I am really happy for you, I really hope that you get the permannt SCS. What sort of drug is in the SCS that you have got? That is great news about you been able to ride your horse if you get the permanent one, I bet you are thrilled.
Many thanks and good luck
Thinking about you at this time
Alison
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
CLINICAL TRIAL...Phase III Trial with Pimavanserin in Patients with PD Psychosis Stitcher Parkinson's Disease Clinical Trials 0 06-16-2007 12:23 AM
Sooo.... Sweet Sunshine Weight Loss & Healthy Living 18 12-12-2006 01:26 PM
OT - I have my first trial! Carly'sMaMa Children's Health 3 09-28-2006 11:55 AM


All times are GMT -5. The time now is 02:15 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.