ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 05-15-2008, 12:58 PM #1
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Join Date: Aug 2006
Location: North Carolina
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BobbyB BobbyB is offline
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Ribbon we need to get ken patterson on tv for awareness.

we need to get ken patterson on tv for awareness.

with this
http://www.wftv.com/video/15958318/index.html

this
http://www.digtriad.com/news/local_s...3&catid=57

and this
http://www.youtube.com/watch?v=nmmU5NTHk7I

to do this

http://www.rolloverals.org/


we have to do this for ken and glenda.
awareness.

we need the first 2 videos on youtube.

we all need to email shows giving them the video links to view plus news stories , ken website and he story.

we owe this to ken, glenda.
so please do it TODAY PEOPLE.

this is BIG NEWS and it's our job to DO IT.

thank you


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Old 05-15-2008, 01:19 PM #2
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Ribbon

Need Inspiration

The Ormsby Girls traveled from California along with their Dad to read this speech on Capitol Hill despite losing their Mom less than 2 months ago. A beautiful family we will never forget.
video
http://www.youtube.com/watch?v=uwxpWjVF-oY


Michele MySpace URL:

http://www.myspace.com/stopals
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Old 05-15-2008, 02:25 PM #3
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Ribbon

My Sister and I went to DC for advocacy week to see what we could do to help. The people we met and the experience of seeing such an amazing community of advocates was beyond inspiring. We posted a video of Ken and Glenda Patterson arriving at the Tomb of the Unknown soldier as they lay a wreath in honor of those who lost their battle with ALS. They made this long and stressful trip to bring attention to anyone who might see them and I would hope that everyone would take a moment to send them a thank you. What they stand for is an inspiration and they have dedicated their lives to making a difference. We are so honored we got to meet them, that we were able to be there and we are more dedicated than ever in exposing this disease to the world and helping to fund a cure. Their web site is www.rolloverals.org
We have a site at www.myspace.com/stopals
and you can see their video at this link http://www.youtube.com/watch?v=nmmU5NTHk7I
as well as another of the Ormsby Girls who traveled from California to read their speech on Capitol Hill.
Stay tough.fight hard
stopals
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"Thanks for this!" says:
Twinkletoes (05-15-2008)
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