[BobbyB]

any new ideas on how to raise awareness ?

[Curious]

sites like www.craigslist.org have announcement sections. same with www.backpage.com

i'm working on updating and adding on to my website today. i already have a link and logo. adding one for the PD stamp. let me know what i can add for you bobby.

[Noidy]

ALS needs a tv add. Not just the name of the disease, but what it does, how quickly it does it, and how it affects the patient. The add also needs to tell how many people it affects each year. A tv add is expensive, and for a psa (do public service announcements even still exist?) the air time would not be prime. Wish we could get some funding to do one on some major stations. A big mistake alot of societies make is they don't make the disease clear to the public, the same goes for the ms adds. They are like "support the walk for ms", but to the average person, they just tune out. Adds need to give more information, and they need to let the public know that they too can be affected.

Wish that idea was possible. Another way would be to make some sort of stickers or fliers with the same information on it. It needs to catch peoples attention as well.

[obilon]

Originally Posted by BobbyB

any new ideas on how to raise awareness ?

Reach out to Social Media outlets. At ALS Association Greater New York we've been doing a bunch of outreach to spread the word, news, raise awareness, etc.

Our homepage lists alll our Social Media spaces at

The internet is a great way to spread the word if you'll excuse the metaphor, virally.

Lon

[BobbyB]

Miniature golf tournament to benefit ALS charity


TINTON FALLS - The Rock & Roll Music Fund will host its first miniature golf tournament to benefit Joan Dancy and PALS, which is dedicated to helping people living with Lou Gehrig's disease.

The event will be held at Twin Brook Golf Center in Tinton Falls beginning at 11 a.m. on Monday, July 28. The outing will include commentary by radio personality Big Joe Henry, live music all day by Pat Guadagno and friends, with contests, lunch and miniature golf. The entry fee of $300 per foursome, includes a round of miniature golf, foursome photo, lunch, refreshments and a gift bag. Contests include a chance to win a new car, courtesy of Barry's Rittenhouse Kerr Shrewsbury. A par-3 hole at Twin Brook is also part of the day's events.

Joan Dancy and PALS helps patients of the disease and their families cope with the struggles of ALS by providing direct aid with medical issues not covered by insurance, as well as providing financial assistance to enhance the quality of life of ALS patients. Building wheelchair ramps, enlarging doorways, and adjusting cabinets are among the projects that PALS has made possible. For more information about Joan Dancy and PALS, visit the Web site www.joandancyandpals.com.

The Rock & Roll Music Fund produces events that raise money for organizations and individuals in need. To participate in the miniature golf event call 732-747-8216 for a registration brochure or visit www.rockandrollmusicfund.org.

http://independent.gmnews.com:80/new..._page/033.html