Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems.


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Old 01-06-2008, 04:40 AM #31
sade sade is offline
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I'm new here..I'm 26 and on Jan. 9th I will be one year post-op from a posterior/anterior L5-S1 fusion with instrumentation.

I'm still having pain, although I'm better than I was before surgery. My rods feel odd, when I try an flex my spine to much it feels like they are being gripped.

The doctors are concerned the bone grafts aren't healing properly, so Ill find out next fri at my 1 year post-op. I'm not where I thought I'd be at this point...I just hope things have fused then I can deal with the pain. I want my active life back, I want to travel without worrying about where I'll rest or how I'll carry my own bags. I want to start thinking about having children with my husband without being scared of how my back will handle it.

This is the hardest hurdle I've ever faced. I have horrible insomnia since the surgery becasue I can't seem to get comfortable. Enough of my late night, over-tired ramblings!!
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Old 01-08-2008, 11:50 AM #32
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I'm new here..I'm 26 and on Jan. 9th I will be one year post-op from a posterior/anterior L5-S1 fusion with instrumentation.

I'm still having pain, although I'm better than I was before surgery. My rods feel odd, when I try an flex my spine to much it feels like they are being gripped.

The doctors are concerned the bone grafts aren't healing properly, so Ill find out next fri at my 1 year post-op. I'm not where I thought I'd be at this point...I just hope things have fused then I can deal with the pain. I want my active life back, I want to travel without worrying about where I'll rest or how I'll carry my own bags. I want to start thinking about having children with my husband without being scared of how my back will handle it.

This is the hardest hurdle I've ever faced. I have horrible insomnia since the surgery becasue I can't seem to get comfortable. Enough of my late night, over-tired ramblings!!
Hey Sade, i'm sorry to hear that your still having issues and pain, thats not cool, i don't know exactly how yours feels, but i know some days my rods feel weird to , especially when its cold, its like the muscles tighten around the rods and its a slight uncomfortable feeling, not painful though, abit like someone has there hand around my lower spine and squeezing/gripping it, this sounds similar to yours but i have no pain, just a "weird" feeling as i like to call it...where is it painful on you ??..in the same spot where they took the bone graft?? or where the rods are ?, i was told the bone graft section can take 18 months to heal by my surgeon and i know when i knock it even slightly it can hurt quite abit , thats right on the back of my hip where they took the bone for the graft, but it doesn't bother me only when i knock it of course!...well i hope the results of your x-rays are good and the fusion has been successful, stay in touch mate!

Mike
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Old 01-14-2008, 05:25 PM #33
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Hey Abby , i had the old one where they shaved my hip bone and used that as putty to fill in around the metal rods.

ok just to update you on things (and everyone else) its been 9 months now since my op and let me tell you things are great! , i would say i'm 98% of what i use to be before the pain started 10 years ago. The only weird thing is i swear i can sometimes feel them some days (the rods that is) and i have set off the metal detectors in airports also..lol..my brothers call me the T-800 terminator , living tissue over polymetal alloy...lol.. , it really weird but i'm getting use to these things. But there is no pain whatsoever, that is the cool thing. I have joined a football club now and i am playing again , really happy about that , its 3 months shy of my 1 year ann. like i said before i would play , but i couldn't take it anymore and i had done lots of back strengthing exercises and sprint tests and also spoke to my surgeon who gave the go ahead. I am feeling very strong now. i can pick up very heavy objects now, things i wouldn't never have even thought about doing pre-op (even a fridge!). So please be encouraged everyone, total success here and you to can be free from back pain, its a life changing operation and it has totally changed my life (just got to find a girlfriend now and things will be complete...lol) Even my mindset about things is different and i certainly don't have anymore suicide thoughts that use to haunt me daily . I really hope to hear about your stories to in this forum so we can all encourage others as it is big step to take and its nice to have someone with you when you go through this. ( i had no-one in the hospital when i went in and i nearly did a runner at the last moment, if you can, take someone with you as it helps alot). ok any other questions please ask me , i am totally open and would like to help others who are going through this.

ok later
Mike
Dear Mike,
Could you tell me what was wrong with your back that you had this surgery? The neuro told me that there is nothing he can do for me. I beg to differ and I guess I need to get a second oppinion. Arthritis is eating away my lower spine and so it is narrowing very bad on my nerves to my legs. I have severe pain and it all started about late 80's. Now it is so bad that I can't even walk very far, stand or sit as well as swimming. Everyone says to get into swimming but when I am using my legs for a period of time the same thing happens when I walk or sit. Get the picture? So what am I supposed to do, sit back and wait till the nerves are totally pinched and I end up in a chair? NOT! I can't sit very long now. Anyway drop me a line and let me know what caused your trouble. Thanks so much, Angel
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Old 01-14-2008, 06:37 PM #34
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Thumbs up Success here too!

Hi Mike, good to meet you. I had the same surgery in 2002 and have never regretted it. I have continued to have other spinal degeneration and still deal with pain but it is nowhere near the pain that I had before my first surgery! I have a wonderful ortho surgeon and I went the whole route of conservative treatments for years before fusion. By that time I would have done anything to reduce the pain. I know that there are more spinal problems in my future but I am still moving and can even still play some golf on good days! So you are right, there are successful surgeries being done all the time. Think positively!
Kat
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Old 01-31-2008, 07:33 AM #35
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Default Vitamins vitamins

Hey all; Thought I'd let you know my X-rays were good. The neuro wants more in May or June and the brace came off

For those of you still suffering - along with the walking and please do walk, I asked for advice at the health food store. I'm so impatient with healing! Anyway, along with the Calcium and Vitamin D, they suggested Magnesium Citrate = to the Calcium for better absorption and also Collagen (ladies, this will help your nails and hair too ). I take a high protein, low carb powder with lowfat milk daily. I am convinced this is helping. I am taking a lot of other vitamins (A, E, C, etc. ) and I know they aren't cheap but neither was the surgery ya know? And I sure don't want to go through it again.

Just some food for thought. It can't hurt afterall and for those with artheritis and degenerative bone disease and women going through the dreadfull change, you need more anyway. Don't expect immediate results, it takes time. My neuro is all for it and agrees it sure can't hurt and is probably helping.

Personally, I want to get back on that golf course as soon as the weather clears!
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Old 01-31-2008, 11:56 AM #36
Redhotbeads Redhotbeads is offline
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Originally Posted by abbygirl312 View Post
Hey all; Thought I'd let you know my X-rays were good. The neuro wants more in May or June and the brace came off

For those of you still suffering - along with the walking and please do walk, I asked for advice at the health food store. I'm so impatient with healing! Anyway, along with the Calcium and Vitamin D, they suggested Magnesium Citrate = to the Calcium for better absorption and also Collagen (ladies, this will help your nails and hair too ). I take a high protein, low carb powder with lowfat milk daily. I am convinced this is helping. I am taking a lot of other vitamins (A, E, C, etc. ) and I know they aren't cheap but neither was the surgery ya know? And I sure don't want to go through it again.

Just some food for thought. It can't hurt afterall and for those with artheritis and degenerative bone disease and women going through the dreadfull change, you need more anyway. Don't expect immediate results, it takes time. My neuro is all for it and agrees it sure can't hurt and is probably helping.

Personally, I want to get back on that golf course as soon as the weather clears!
I had C6/7 ACDF seven weeks ago and as soon as I could swallow well (within a week) I went back to my normal regimen of Vitamin D, Calcium, Magnesium, multi, and Glucosamine. I figure it can't hurt. Everything looked fine at my six-week x-rays (although obviously, nowhere near fused). But I feel REALLY good and my operation was very successful!! I do think the vitamins and minerals help.

I plan to learn how to golf this year, too!
Kelly
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Old 02-01-2008, 03:47 AM #37
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Originally Posted by angels in the midst View Post
Dear Mike,
Could you tell me what was wrong with your back that you had this surgery? The neuro told me that there is nothing he can do for me. I beg to differ and I guess I need to get a second oppinion. Arthritis is eating away my lower spine and so it is narrowing very bad on my nerves to my legs. I have severe pain and it all started about late 80's. Now it is so bad that I can't even walk very far, stand or sit as well as swimming. Everyone says to get into swimming but when I am using my legs for a period of time the same thing happens when I walk or sit. Get the picture? So what am I supposed to do, sit back and wait till the nerves are totally pinched and I end up in a chair? NOT! I can't sit very long now. Anyway drop me a line and let me know what caused your trouble. Thanks so much, Angel
Hey Angel, they couldn't actually tell me what was wrong with me (they suspected scoliosis but weren't sure) , there were segments of my vertebrae that had turned black and died so to speak (you could clearly see it on my MRI)....and thus the disc's had shrunken and weren't doing the job anymore, but every other vertebrae and disc looked fine...so they put the rods in and its been nearly perfect ever since.

All the best mate and i hope you find a breakthrough....

Cheers
Mike
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Old 02-01-2008, 03:48 AM #38
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Originally Posted by katshorses View Post
Hi Mike, good to meet you. I had the same surgery in 2002 and have never regretted it. I have continued to have other spinal degeneration and still deal with pain but it is nowhere near the pain that I had before my first surgery! I have a wonderful ortho surgeon and I went the whole route of conservative treatments for years before fusion. By that time I would have done anything to reduce the pain. I know that there are more spinal problems in my future but I am still moving and can even still play some golf on good days! So you are right, there are successful surgeries being done all the time. Think positively!
Kat
Cheers for sharing your story Kat!
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Old 03-23-2008, 03:46 PM #39
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Default Thanks for the good vibes

I wanted to write and thank everyone for their posts and information regarding the L-4 - S-1 fusion, especially KiwiMike. I am having a laminectomy and L4/S-1 fusion this Thursday, 3/27. My surgeon wants me to walk some each day and gradually get it up to 3 miles in 3 months. That seems like an awful lot!

Isn't the fusion complete after 6 months? I'm a little scared of the pain and will be on the morphine pump in the hospital, and then, he said likely percocet and muscle relaxers for I don't know how long at home.

Anyway, you have all relieved some of my pre-surgery anxiety and I thank you for that!

Bev
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Old 03-25-2008, 07:17 PM #40
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I had C6/7 ACDF seven weeks ago and as soon as I could swallow well (within a week) I went back to my normal regimen of Vitamin D, Calcium, Magnesium, multi, and Glucosamine. I figure it can't hurt. Everything looked fine at my six-week x-rays (although obviously, nowhere near fused). But I feel REALLY good and my operation was very successful!! I do think the vitamins and minerals help.

I plan to learn how to golf this year, too!
Kelly
Kelly, Yep, Glucosamine is in my little bundle of vita-poppers too. I hope you do better than me at golf Good luck out there!
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