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Originally Posted by heb1212
Hi, Susanne... If you monitor your posts, I wonder what your experience with bone and muscle pain has been. I've had body wide neuropathy for two years now, and the muscle pain is crazy bad. At least I think it's muscle pain. It's definitely different than the nerve pain and seems to be the muscles, though it's not a normal muscle pain like from over working or pulling a muscle. It's crazy pain in the major muscle groups. I thought the neuropathy was bad enough, then this kicked in big time a year ago. Has your neuropathy been determined to be length dependent or not? Gosh, so sorry you're a member of this most unfortunate "club". The info from here and kind responses of others helps keep me sane.
Cathy
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Hi Cathy!
I have hereditary neuropathy, CMT, so have both large and small fiber neuropathy. It is length dependent, but different from the others in that it keeps progressing. It involves most of my arms and legs and also caused lifelong constipation. It is a neuromuscular disorder, as the nerves die back in a length dependent pattern the muscles follow, so there is muscle pain from all the extra stress. It feels like bone pain, but the mind plays tricks with nerve pain. I would think this pattern could appear in other neuropathies since nerve function does affect the muscles if enough time goes by, so you may have weakened muscles which puts stress on all the others.
Please let me know if you have any questions.