Hi, Susanne... If you monitor your posts, I wonder what your experience with bone and muscle pain has been. I've had body wide neuropathy for two years now, and the muscle pain is crazy bad. At least I think it's muscle pain. It's definitely different than the nerve pain and seems to be the muscles, though it's not a normal muscle pain like from over working or pulling a muscle. It's crazy pain in the major muscle groups. I thought the neuropathy was bad enough, then this kicked in big time a year ago. Has your neuropathy been determined to be length dependent or not? Gosh, so sorry you're a member of this most unfortunate "club". The info from here and kind responses of others helps keep me sane.
Cathy
Quote:
Originally Posted by Susanne C.
I believe the weaning off period is quite long, like a reduction of 300mg. per week? If you were to start by reducing the middle of the day or morning dose, keeping the evening dose until last so as not to disturb your sleep you could stop at the first sign of returning pain.
I have wondered how much it really helps, I have so many bone and muscle pains as this progresses, but I do notice more burning and zapping if I miss a dose so it must be doing something.
Good luck! More knowledgeable people will respond, I am sure!
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08-23-2013, 05:16 PM
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