New Member
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Join Date: Aug 2013
Posts: 4
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New Member
Join Date: Aug 2013
Posts: 4
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Advocate
I do, I have an awesome husband, we were married about 6 months before my accident. My problem is that I live in a rural area where I can't get the health care that I need. My surgeon is about an hour away and he's done with me. He did an RFC for me and my SS worker can't locate it.
The fact that this is an unknown disorder to so many, including my caseworker is the biggest issue of all. If you are going to work in a field like SSDI then read what a person says, read your own handbook, it tells you about the CRPS documentation. I'm just frustrated with the red tape crap.
All your life you pay into a system that consistently denies you when you need it, yet we can not deny the payments they take from us.
My entire personality has changed, the way I live, dress, do my hair, drive my car, cook my meals, respond to people. Our deductible just went up big time, even if I could find a Doc that knew what I was talking about I can not afford continual care. I deal with my pain the only way I know how. Meds don't affect it at all, usually heat and movement if I can. My hand gets so cold that people will touch it and be amazed. I wear hot packs inside gloves.
I think the biggest obstacle that I have to overcome is getting my caseworker to understand that I can not go back to work, and she is not even willing to read what I've written to her or she would not be stating her replies the way she does.
I'm going to gather all my records myself since my Doc's haven't complies and have someone drive me the 80 miles to the closest SS office and take them all in and say here, let's go over these. ALL DAY LONG!
AArrrrrgggghhh!!
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