Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 09-05-2013, 01:58 PM #4
PebblesCanDo PebblesCanDo is offline
New Member
 
Join Date: Aug 2013
Posts: 4
10 yr Member
PebblesCanDo PebblesCanDo is offline
New Member
 
Join Date: Aug 2013
Posts: 4
10 yr Member
Default Advocate

I do, I have an awesome husband, we were married about 6 months before my accident. My problem is that I live in a rural area where I can't get the health care that I need. My surgeon is about an hour away and he's done with me. He did an RFC for me and my SS worker can't locate it.
The fact that this is an unknown disorder to so many, including my caseworker is the biggest issue of all. If you are going to work in a field like SSDI then read what a person says, read your own handbook, it tells you about the CRPS documentation. I'm just frustrated with the red tape crap.
All your life you pay into a system that consistently denies you when you need it, yet we can not deny the payments they take from us.
My entire personality has changed, the way I live, dress, do my hair, drive my car, cook my meals, respond to people. Our deductible just went up big time, even if I could find a Doc that knew what I was talking about I can not afford continual care. I deal with my pain the only way I know how. Meds don't affect it at all, usually heat and movement if I can. My hand gets so cold that people will touch it and be amazed. I wear hot packs inside gloves.
I think the biggest obstacle that I have to overcome is getting my caseworker to understand that I can not go back to work, and she is not even willing to read what I've written to her or she would not be stating her replies the way she does.
I'm going to gather all my records myself since my Doc's haven't complies and have someone drive me the 80 miles to the closest SS office and take them all in and say here, let's go over these. ALL DAY LONG!
AArrrrrgggghhh!!
PebblesCanDo is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Frustration DreaB Reflex Sympathetic Dystrophy (RSD and CRPS) 3 08-03-2011 07:13 PM
frustration ! luie Social Security Disability 8 05-10-2010 02:21 PM
frustration colleen1 Survivors of Suicide 2 03-15-2010 09:05 AM
PT and frustration, dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 10 05-06-2009 01:01 PM
frustration frogga Reflex Sympathetic Dystrophy (RSD and CRPS) 5 02-22-2007 07:43 AM


All times are GMT -5. The time now is 11:16 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.