Quote:
Originally Posted by Susanne C.
The weakness in the legs is suspicious of large nerve involvements. The nerves die back and the muscle follows. I cannot move my toes or the front of my feet and i have limited flex in my ankles, trying results in muscle spasms. My upper leg muscles are weakening, I need help getting out of chairs and up steps, it seems like I've lost the lifting muscles in my thighs in the past six months. CMT can progress to wheelchair, from my reading on other forums it seems like many people have more severe symptoms than the web info cut and pasted from the same sources would seem to indicate. The Mayo clinic site is particularly dismissive of the severity of the disease.
I always like to put it out there as a possible cause as personally I believe many idiopathic cases are actually CMT, and doctors jut have little experience with it. It does give closure, what it doesn't give is hope.
How long ago was your EMG? A lot depends on the ability of the doctor or technician conducting the test.
|
Hi Susanne,
I was out of commission the last few days. Feeling better now. My last EMG was probable about a year ago. All but one of them in the last 8 years was done at the same place. I'm sorry your have to go thought all of this. I understand why you say it gives closure but not hope.
Thanks for taking the time to let me know.