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Old 12-20-2013, 11:13 PM #20
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Quote:
Originally Posted by hopeful View Post
Hi Susanne & Kitt,
Thanks for your answers. I probably don't have CMT. My EMG's were normal. I was just wondering because I have extremely high arches. It also seems my muscles in my legs are getting weaker and weaker. My skin biopsy was positive for SFN.
I'm just always trying to figure out what is going on.
Thanks again!
The weakness in the legs is suspicious of large nerve involvements. The nerves die back and the muscle follows. I cannot move my toes or the front of my feet and i have limited flex in my ankles, trying results in muscle spasms. My upper leg muscles are weakening, I need help getting out of chairs and up steps, it seems like I've lost the lifting muscles in my thighs in the past six months. CMT can progress to wheelchair, from my reading on other forums it seems like many people have more severe symptoms than the web info cut and pasted from the same sources would seem to indicate. The Mayo clinic site is particularly dismissive of the severity of the disease.

I always like to put it out there as a possible cause as personally I believe many idiopathic cases are actually CMT, and doctors jut have little experience with it. It does give closure, what it doesn't give is hope.

How long ago was your EMG? A lot depends on the ability of the doctor or technician conducting the test.
Susanne C. is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ElaineD (12-21-2013), Idiopathic PN (12-20-2013)
 


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