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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Hey Jeff :)
Quote:
Originally Posted by jeff reid
Thank you Debi, I believe mine was also via a skin biopsy, as the assistant informed me of this a few weeks after taking three plugs from my leg. I just viewed some info on mitochondrial disease and it looks like that can also trigger it. The horrible pain some experience with small fiber neuropathy seems to have been kind to me. I have had many episodes of severe pain, that are very difficult to describe, but they are so few, short and far between that I'd call it minor in nature. I hope you are as lucky as I in that regard.
Best regards,
Jeff
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Just wanted to check in and see how you're doing ?
Nope...not as lucky as you in the pain dept  We're (me and the dr's) thinking that the chemo (taxol/carbo combo) actually killed the A and C fibers in my feet....they are zero....nada....dead. You'd think they would just be quiet and leave me alone right ?
Working with my neuro on diff meds to try and find something that works. So far I think it's 'tapped' down the pain but I'm still taking 1/2 a vicodin every 3 or 4 hours and 1/2 a Xanax when it's really bad and puts me in the bed. My newest symptom is stinging between my toes....nice.
Let us know how you're doing.
Debi from Georgia
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