Just wanted to check in and see how you're doing ?

Nope...not as lucky as you in the pain dept We're (me and the dr's) thinking that the chemo (taxol/carbo combo) actually killed the A and C fibers in my feet....they are zero....nada....dead. You'd think they would just be quiet and leave me alone right ?

Working with my neuro on diff meds to try and find something that works. So far I think it's 'tapped' down the pain but I'm still taking 1/2 a vicodin every 3 or 4 hours and 1/2 a Xanax when it's really bad and puts me in the bed. My newest symptom is stinging between my toes....nice.

Let us know how you're doing.

Debi from Georgia

Hi Debi,
Thanks for getting back with me. I'm not doing very well and waiting for my 2/24 appointment with my neurologist. I've been having what I call 'brain zaps' recently and have made an appointment with the surgeon who removed a brain tumor in 2010. My GP seems useless. I made a big mistake 10 months ago telling him I visited a psychologist. Since then everything wrong with me is psychosomatic, no matter how much evidence proves him wrong, and it drives me nuts that I have to somehow prove my veracity. It seems he's developed an hypothesis that no fact shall alter. One doctor tells me I'm probably dying but we're going to wait a few weeks to fill you in and another tells me to see a shrink. This really sucks especially in that my father, who is dying of cancer, recently moved in with us. How this must look to the kids. How motivational.

Thanks for letting me get that out! I have recently had some painful moments in my feet and hope they stay away. Probably gods way of saying ' hey cheer up, it could be worse'.
How often do you get the pain sensations ? Did it start gradually and does the pain medication help ?

Best regards,

Jeff

It seems the people closest to us get the worst part of us as we go through these medical issues.

I'm very sorry about your father and it is so good of you to take him in. How old are your children ? I have 2 adult children and 6 grandchildren ranging in age from 8 to almost 17 and it really upsets me when I hurt their feelings because I'm not feeling well or am stressed.

I have symptoms going on in my feet 24/7....sometimes painful and sometimes not too bad. I think the combination of meds that I'm on now do help but I'm still unable to clean my house, shop for groceries or cook. Those 3 things are my goals. When this started 9 months ago it came on suddenly a month after my chemo ended and never let up. I could not do this without the pain meds. I take vicodin every 3 to 4 hours and Xanax as needed when the pain is really bad. My neuro does not encourage pain meds but my PCP is the one prescribing them and my neuro hasn't told me not to take them. Wouldn't do him any good if he did, I would take them anyway.

I know it will be hard but have you thought about changing doctors ?

Please let me know what your neuro says.

Debi from Georgia

Just wanted to check in and see what the dr said on the 24th.....you doing ok ?

Debi from Georgia