I really hope the IVIG will help you. I had five rounds over a years time - three while I was in the hospital (during 3 months in hospital) and two at home later that year because my eyes locked in one place and I couldn't move them. Not one procedure helped it just cost my insurance company a lot of money because the procedure is very expensive. I also had one round of plasmapheresis the following year and that did nothing to help my symptoms, etc. Can't take mestinon. Took it once and it shut down my lungs and I ended up in ICU for a week. Don't want to take a chance with cellcept.

I'm now just trying to maintain my life taking bachlofen, immuran, small amount of predsisone and valium all to help stop the seizures and horrible stiffness, etc. that is my life. The side effects of the drugs is also taking its toll but it's my only choice.

Good luck

Southern Bell