I really hope the IVIG will help you. I had five rounds over a years time - three while I was in the hospital (during 3 months in hospital) and two at home later that year because my eyes locked in one place and I couldn't move them. Not one procedure helped it just cost my insurance company a lot of money because the procedure is very expensive. I also had one round of plasmapheresis the following year and that did nothing to help my symptoms, etc. Can't take mestinon. Took it once and it shut down my lungs and I ended up in ICU for a week. Don't want to take a chance with cellcept.

I'm now just trying to maintain my life taking bachlofen, immuran, small amount of predsisone and valium all to help stop the seizures and horrible stiffness, etc. that is my life. The side effects of the drugs is also taking its toll but it's my only choice.

Good luck

Southern Bell

Fellow MGers -
How soon after the treatment did you see results?

I'm having my first IVIG treatment this week (day 3 of 5 prescribed) for my double vision issue that isn't resolving. I haven't seen any results yet, but was wondering what I good timeframe typically is?

Sorry to previous poster about not seeing results! That really stinks and is frustrating! I hope mine isn't the case!

I usually notice a touch of improvement that night.. but it isn't until day 4 (after a one day treatment) that It really hits me dramatically and helps.. now if I get a loading dose the IVIG itself is hard on my body it seems.. so it took a bit longer.. the first treatment I had (4 days of it)... i was better, but thought maybe it was placebo effect.. it wasn't until the next treatment 3 weeks later that it was like BOOM _ I woke up my old self... I haven't gotten back to that good in a few years.. but it was amazing.. so sometimes it can take a bit... Good luck!!

For the first few days after IVIG I fell rather sick - headache, aches & pains, & tired. About a week after IVIG, those symptoms are gone and I begin to feel better. About 2 weeks after IVIG, I am good as I am going to get, and then there is a very slow decline until the next IVIG and the cycles starts again.

hope you feel better soon
kathie