Quote:
Originally Posted by cdwall
I will hopefully be getting an off label bisphosphonate infusion (three consecutive days for four hours a day) using a protocol used for Paget's patients in the next few weeks. It will not be neridronate since it's not approved for use in this country yet. Hopefully the protocol is similar enough to help. There have been other studies with smaller numbers of participants that have shown good results using other similar bisphoshonates. FDA approval can take a long time. I want to do this asap.
Has anyone else here had bisphosphonate infusions using a US approved drug but off label use for CRPS?
Denise
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My labs came back good enough to have the bisphosphonate infusions. I'm so excited I'm just beside myself! It sounds like it could get started within the next few weeks.