Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-23-2014, 03:02 PM #9
cdwall cdwall is offline
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Join Date: Jan 2014
Location: NC
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cdwall cdwall is offline
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Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
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Originally Posted by cdwall View Post
I will hopefully be getting an off label bisphosphonate infusion (three consecutive days for four hours a day) using a protocol used for Paget's patients in the next few weeks. It will not be neridronate since it's not approved for use in this country yet. Hopefully the protocol is similar enough to help. There have been other studies with smaller numbers of participants that have shown good results using other similar bisphoshonates. FDA approval can take a long time. I want to do this asap.

Has anyone else here had bisphosphonate infusions using a US approved drug but off label use for CRPS?

Denise
My labs came back good enough to have the bisphosphonate infusions. I'm so excited I'm just beside myself! It sounds like it could get started within the next few weeks.
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