I've been reading about Tysabri having some positive effects on PPMS. I'd REALLY like to just go straight to this medication but insurance won't let me. And we're not millionaires so we can't afford it out of pocket.

Has anyone heard of LEMTRADA? My neuro mentioned that that would be the one he'd like me to start on first... seems rather extreme (it basically knocks out your immune system so that it can rebuild)... 5 infusions over 5 days, then a year later, 3 infusions over 3 days and you're done. It's risky though, of course. There have been deaths. And it's 95,000$.

I think he thinks it could help with PPMS, though he won't say it