[MSbelle]

I've been reading about Tysabri having some positive effects on PPMS. I'd REALLY like to just go straight to this medication but insurance won't let me. And we're not millionaires so we can't afford it out of pocket.

Has anyone heard of LEMTRADA? My neuro mentioned that that would be the one he'd like me to start on first... seems rather extreme (it basically knocks out your immune system so that it can rebuild)... 5 infusions over 5 days, then a year later, 3 infusions over 3 days and you're done. It's risky though, of course. There have been deaths. And it's 95,000$.

I think he thinks it could help with PPMS, though he won't say it

[Kitty]

Originally Posted by MSbelle

I've been reading about Tysabri having some positive effects on PPMS. I'd REALLY like to just go straight to this medication but insurance won't let me. And we're not millionaires so we can't afford it out of pocket.

Have you tried to see if there are any patient assistance programs (PAPs) for Tysabri?

It's the only reason I'm able to be on Tecfidera. There's no way I could afford the nearly $5K a month this drug costs.

It might be in your best interest to explore what drugs have a patient assistance program. You can see if you qualify even if you have medical insurance.

Usually the drug itself has something on its website regarding patient assistance.

http://www.tysabri.com/support/cost

Good luck!

[MSLazarus]

Originally Posted by MSbelle

I've been reading about Tysabri having some positive effects on PPMS. I'd REALLY like to just go straight to this medication but insurance won't let me. And we're not millionaires so we can't afford it out of pocket.

Has anyone heard of LEMTRADA? My neuro mentioned that that would be the one he'd like me to start on first... seems rather extreme (it basically knocks out your immune system so that it can rebuild)... 5 infusions over 5 days, then a year later, 3 infusions over 3 days and you're done. It's risky though, of course. There have been deaths. And it's 95,000$.

I think he thinks it could help with PPMS, though he won't say it

Hi,
Sorry I am so lazy that I did not copy and post the Lemtrada info! But it is on the Braintalk site...on the first page of General answers....

If you do not find it let me know. Lemtrada was called campath while being developed.
Linda