Quote:
Originally Posted by goldenwillow
I am awaiting my report which I was told would take a month, now 2 weeks out. The past 2 weeks have been very difficult. I just want to know what my neuropsychologist found and hope to move forward. It feels overwhelming but I have felt that way most my life so what's another 2 weeks has been my mantra 
I am also finding that I have been secretly suffering with my impairments since I was very young. It is somewhat validating having my diagnosis' . Known about PTSD for years but the TBI, new diagnosis since March. Not sure which injury in my life brought that on. My mother and I wrote a list of all my head injuries and loss of conciousness and it was quite long. However, the last MVA in September '08 sealed the deal apparently. Not one person in the ER at that time spoke about TBI (according to my husband and my paperwork). I had fractured C6, C7 and had 2 LARGE open wounds frontal and occipital that required many staples to close. Also a subarachnoid hemorrage as well.
I was blessed with pregnancy a month later (had made the decision to have a baby a few months prior to our accident) and into another unknown chapter of life. I had no idea that my pre existing anxieties were 10 fold due to my TBI, thought it was my prior PTSD and the new ones you naturally get as a new parent. Now that my child is going to school, I have some time to myself and now can breathe a bit. But with that, I see my impairments much clearer, sort of speak, and find I am saddened and relieved with all this information, and more is to come.
I guess I needed to vent, thank you. The support group in my area, meets once a month at 7pm to 9pm at night, weirdly, and I am toast at that time of day, usually
trying to bed the family down to sleep. |
I hear you on the difficulties of being a TBI mom.
With a young family, between kid activities and bedtime rituals, my area's evening support group meeting just won't work for me. TBI is isolating. Being a TBI mom, well... As women, we are socialized to care for others and ignore our own needs - no matter how pressing. The number 1 rule of motherhood is MOMS CAN'T GET SICK.
As moms, it's really hard for us to get the rest and quiet so important to TBI recovery. On the plus side, the desire to do better for our children provides powerful motivation to keep striving to improve. Frankly, I was so badly injured, if I didn't have a family that needed me, I think I would have just given up.
While it's not the case for me, perhaps there are other young moms in your support group. If so, maybe they'd be interested in pushing for a different meeting time and/or forming a smaller subgroup that was more accommodating for those on the mommy track.
I had some PTSD after my mva. Are you being treated for this? In addition to traditional talk/desensitizing therapies, some interesting work is being done with medications and memory. I think there is reason for optimism on this front.