I actually left this website for a few months after I started this thread. I was very upset and angry that what I had to say about the dental forums was not taken seriously.
Bryanna and I have discussed this topic many times, in public and in private. The views I have expressed about Trigeminal Neuralgia, Neuropathy and nerve damage are more than just my "personal opinion" just as the info she distributes is more than hers. Neither of us are specialists.
Not all neurological problems in the face are due to an infection. This possibility is not being addressed properly. So I guess that is where Vowel Lady and I come in.
There is so much that misunderstood, unknown and down right confusing about this. It is a "hot" topic for sure. I search the dental section looking for possible cases of neuropathy and will continue to do so. Awareness needs to be raised. And I think a site with the name "Neuro Talk" would be a good place to start.
Quote:
Originally Posted by Vowel Lady
I too wish there was more information available on the dental forum to help those of us who have either been injured or are in a confusing state indicating neurological damage. However, these forums are open to people who are simply donating their time and sharing their experiences or knowledge and I suppose that might not fully include neurological information/ implications.
I had dental work that resulted in permanent pain and two neurologists, a pain management physician, my GP, an oral surgeon who is also a Medical Doctor diagnosed me with ATN caused by dental work, so I am CONFIDENT of what happened.
But, I do have dental concerns and I like and appreciate the dental information brought up for CONSIDERATION.
But I also see where neurological damage should be brought up for consideration when nerve related symptoms are present!!!!!!!!!! This is vital.
Jane, I think we might consider referring people to the TRigeminal Neuralgia site here and also to the varying Associations that might be able to help those who have been hurt in the dental chair and might now need the care of a neurologist. Or variations...people with some sort of confusing (what seems like) dental-related pain that should consult a neurologist before they agree to dental procedures such as a rc or an extraction!!!! I am forever grateful to the Oral Surgeon/M.D. who flat out apologized to me for the dental profession, told me I had been injured, to stop seeing dentists and to see a neurologist as soon as possible.
Sadly, I think it's hard for people to cope with seeming dental pain and then have to see a second doctor. I lost one tooth from this madness and if that oral surgeon/MD hadn't helped me like he did, I probably would have lost many more needlessly (extractions). So, I think it would likely be a service to suggest to anyone on the dental forum that before they rc a tooth or pull a tooth if they have what looks like nerve damage, to speak with a highly trained OS (at the very least) or a neurologist (better). Geez, I am sure, just like myself, you have heard from MANY sad people who have had needless dental procedures due to nerve pain. The authors of the book Striking Back talk about it a lot.
Wishing you MANY low pain days in 2015 and success in your mission. Blessings.
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