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Old 01-11-2015, 07:58 PM
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Lynn Lynn is offline
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Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
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Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
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Gosh I really thought I had posted on this thread. I must have shut down before submitting.

I too am very interested in any information about Lemtrada - my doctor wants me off Tysabri, I don't like the sound of any of the oral drugs and having had 8 years of injecting myself with Beta I don't want to go down that road again.

I can see couple of potential problems with it though. Lemtrada is a monoclonal antibody, like Tysabri (Alemtuzumab/Natalizumab) - so if you are (like me) JCV+, the risk of PML may be an issue, although you only have Lemtrada twice, over two years, as opposed to monthly with Ty your exposure may be limited. There are also other documented auto-immune issues with Lemtrada such as thyroid disturbances and blood (immune thrombocytopenia - low platelets).

I need to discuss it with my Neuro when I see him in February.

Regards
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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MSbelle (01-11-2015)