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Old 01-11-2015, 07:58 PM #1
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Gosh I really thought I had posted on this thread. I must have shut down before submitting.

I too am very interested in any information about Lemtrada - my doctor wants me off Tysabri, I don't like the sound of any of the oral drugs and having had 8 years of injecting myself with Beta I don't want to go down that road again.

I can see couple of potential problems with it though. Lemtrada is a monoclonal antibody, like Tysabri (Alemtuzumab/Natalizumab) - so if you are (like me) JCV+, the risk of PML may be an issue, although you only have Lemtrada twice, over two years, as opposed to monthly with Ty your exposure may be limited. There are also other documented auto-immune issues with Lemtrada such as thyroid disturbances and blood (immune thrombocytopenia - low platelets).

I need to discuss it with my Neuro when I see him in February.

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MSbelle (01-11-2015)
Old 01-11-2015, 09:14 PM #2
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Thanks for replying Lynn!

I am seeing my neuro tomorrow to discuss it (I also want to talk about Tysabri). I'll let you know what he says and what I decide to do. Anyone have an extra 95,000$ lying around they want to give me to pay for it? lol
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SallyC (01-12-2015)
Old 01-12-2015, 07:43 AM #3
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Naaaaah...no good for the money, but interested in the opinion. Good luck - I am really interested in the info.

Let me know how you go.
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