Thread: Despairing
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Old 02-05-2015, 06:02 AM
juliejayne juliejayne is offline
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
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juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
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Finally, after a failed SFEMG, the MG Specialist, phoned me to tell me that I had no neurological problems and to go back to my GP.

For good measure he added that he didn't need to do any blood tests as he could see that I did not have MG. He has seen hundreds of MG patients and can tell in a single consult, with no tests.

When I pointed out that Blepharospasm was neurological, he stated that the Neuro-ophthalmologist was clearly wrong because HE could see no signs of it.

As to why Mestinon had produced such a remarkable improvement, well according to him anyone would improve on Mestinon, and Placebo effects were common.

Unless I can get his boss to respond to my emails or letters, I have no other options. Anyone any suggestions?
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