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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Finally, after a failed SFEMG, the MG Specialist, phoned me to tell me that I had no neurological problems and to go back to my GP.
For good measure he added that he didn't need to do any blood tests as he could see that I did not have MG. He has seen hundreds of MG patients and can tell in a single consult, with no tests. When I pointed out that Blepharospasm was neurological, he stated that the Neuro-ophthalmologist was clearly wrong because HE could see no signs of it. As to why Mestinon had produced such a remarkable improvement, well according to him anyone would improve on Mestinon, and Placebo effects were common. Unless I can get his boss to respond to my emails or letters, I have no other options. Anyone any suggestions? |
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