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Old 03-02-2015, 02:53 PM
baba222 baba222 is offline
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Join Date: Sep 2014
Location: Down South
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baba222 baba222 is offline
Member
 
Join Date: Sep 2014
Location: Down South
Posts: 408
10 yr Member
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Quote:
Originally Posted by Neuroproblem View Post
i dont know if the tuesday appt will be worth it, since she already dismissed it as a organic cause. and a specialist appt that is months away is just another one of her "its not a problem, its in your head". none of my symptoms subsided to normal one bit, they only go into a quiescent state, then come back more widespread or with a new symptom. At one point i lost almost all my smell, and getting strange sensations. The odd thing is that i dont have neuropathic symptoms like other people, such as consistent pain, numbness. At one point at the end of last year, i had a burning rash. The symptoms came all at once when i took the diphenhydramine 2 months ago. mostly its peripheral nerves that are affected, the ones that detects sensations. I do not have numbness or pain, just loss of internal sensations like my smell. She already blew off the other vitamin deficiency tests. I think i need to be retested for thyroid and glucose issues as well. or an possible MRI. They dispute that my smell loss is a result of neurological, i disagree since my smell loss coincides with my pins and needles neuropathy, "when i get an attack fo pins and needles, i can feel it in my nose(eventhough i loss sensation of air going through the nose. I will try to ask for an earlier appointment, for the specialist. She believes im psychosomatic.
So here is all about the olfactory nerve:

http://en.wikipedia.org/wiki/Olfactory_nerve

You may already know this.

You can play dumb, and say, "Doctor, wow, I thought sense of smell was related to a cranial nerve. I am not a doctor, but aren't the cranial nerves neurologically related and this one regenerates. So could I not have different sensations related to smell?"

On the other hand that might be too aggressive. If you have a person that is funny, maybe they can make a joke and the doctor will relax.

I have a friend now with folks listening to her "fibromyalgia" finally believing her symptoms after 10 years.

She says, "Doc, I don't know what is wrong with me, but I am jacked up!"

This forum has helped me more than all the docs, family, and friends combined. Very few people can relate to symptoms and even the Neurologists don't want to hear your symptoms-guess it wears them out. I do not wish my symptoms on anyone for any 30 seconds.

Hope you are better soon and get heard by someone who can help you.
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"Thanks for this!" says:
zkrp01 (03-03-2015)