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Old 03-01-2015, 08:46 PM #3
Neuroproblem Neuroproblem is offline
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Join Date: Feb 2015
Posts: 355
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Neuroproblem Neuroproblem is offline
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Join Date: Feb 2015
Posts: 355
10 yr Member
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Quote:
Originally Posted by baba222 View Post
I have found, after going to world renowned Mayo, big teaching place well regarded place, and local, that one has to act like they are completely fine and recite their symptoms only when asked. The recitation has to be as benign as listing a recipe.

I have been labelled anxiety ridden many times, when I was not, but the doctor listening was. Try to have the dates (like you have listed)-that is good. Try to discuss the symptoms and how they changed. Focus on the exact symptoms now. I thought the history was very important too, but when you connect the dots for them, they discount the connection, because it is not their idea.

I am not just being negative. I am trying to help you get to being heard.
I am sorry that you feel so badly.
i dont know if the tuesday appt will be worth it, since she already dismissed it as a organic cause. and a specialist appt that is months away is just another one of her "its not a problem, its in your head". none of my symptoms subsided to normal one bit, they only go into a quiescent state, then come back more widespread or with a new symptom. At one point i lost almost all my smell, and getting strange sensations. The odd thing is that i dont have neuropathic symptoms like other people, such as consistent pain, numbness. At one point at the end of last year, i had a burning rash. The symptoms came all at once when i took the diphenhydramine 2 months ago. mostly its peripheral nerves that are affected, the ones that detects sensations. I do not have numbness or pain, just loss of internal sensations like my smell. She already blew off the other vitamin deficiency tests. I think i need to be retested for thyroid and glucose issues as well. or an possible MRI. They dispute that my smell loss is a result of neurological, i disagree since my smell loss coincides with my pins and needles neuropathy, "when i get an attack fo pins and needles, i can feel it in my nose(eventhough i loss sensation of air going through the nose. I will try to ask for an earlier appointment, for the specialist. She believes im psychosomatic.
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