Quote:
Originally Posted by canagirl
You said when this first came on it was at its worst. Has it gotten better? What are doing for pain relief?
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I'm one year in and still struggling. I'm on 2400 mg of gabapentin and 10 mg nortriptyline. But when my symptoms first came on, I could barely work and almost went on disability. There was burning all over my body - especially face, back of my head, neck, and arms. My lower half is impacted as well.
Now, my body pretty much burns and buzzes every single day. But at least I can say that I sleep. The burning is very hard to deal with but it's not like it was at onset where the pain was surreal. I really have to watch the temperature of the showers that I take because they can cause me to burn later in the day.