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Old 03-04-2015, 11:38 PM
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madisongrrl madisongrrl is offline
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Join Date: Jul 2014
Location: Midwest
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8 yr Member
madisongrrl madisongrrl is offline
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Join Date: Jul 2014
Location: Midwest
Posts: 584
8 yr Member
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Quote:
Originally Posted by canagirl View Post
You said when this first came on it was at its worst. Has it gotten better? What are doing for pain relief?
I'm one year in and still struggling. I'm on 2400 mg of gabapentin and 10 mg nortriptyline. But when my symptoms first came on, I could barely work and almost went on disability. There was burning all over my body - especially face, back of my head, neck, and arms. My lower half is impacted as well.

Now, my body pretty much burns and buzzes every single day. But at least I can say that I sleep. The burning is very hard to deal with but it's not like it was at onset where the pain was surreal. I really have to watch the temperature of the showers that I take because they can cause me to burn later in the day.
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