You said when this first came on it was at its worst. Has it gotten better? What are doing for pain relief?

I'm one year in and still struggling. I'm on 2400 mg of gabapentin and 10 mg nortriptyline. But when my symptoms first came on, I could barely work and almost went on disability. There was burning all over my body - especially face, back of my head, neck, and arms. My lower half is impacted as well.

Now, my body pretty much burns and buzzes every single day. But at least I can say that I sleep. The burning is very hard to deal with but it's not like it was at onset where the pain was surreal. I really have to watch the temperature of the showers that I take because they can cause me to burn later in the day.

Any bad side effects from nortriptiline? Which one is most effective for the burning pain? Have u ever tried to get off of either? Tia!

Nortriptiline makes me dry but helps with my sleep. I did stop taking it for the past several weeks and I've felt awful, so I started taking it again.

I also stopped taking gabapentin 2 months after the onset of my symptoms. That is when I had a variety of doctors trying to tell me that I had fibro. What a joke! Stopping the medication during that time was not very smart. I woke up feeling like I couldn't move and there was a bed of nails from behind my eyeball down my spine all the way to my left foot.