Quote:
Originally Posted by canagirl
Hello,
I am waiting for a skin biopsy so I don't know whether or not I have SFN. However, for the last 6 months I have literally been burning head to toe all the time. It started a year ago with full blown head to toe 100/minute muscle twitching. Present symptoms: I have twitching, electrical sensations, burning, tingling, prickling. These sensations are literally 24/7, happen all the same time. I am in agony. My Dr. doesn't think this is SFN b/c I don't show clinical evidence of SFN. If it's not, what else could it be? I need to point my Dr. in the right direction (I have seen 3) and they all say nothing wrong with you, sorry I won't see you again.
Tests so far
MRI - head, neck, full back - all normal
EMG - right leg and left arm - came back with carpal tunnel in left arm
EEg - normal
Bloodwork - Ca, Mg, Potassium, glucose, iron, B12, copper, ANA, lyme, Igg, Iga, Igm, female hormones, testosterone, (some more I can't remember) - all normal
Urine - norepinephrine, cortisol - normal
What else could this be? What I have them look for? Please help. I'm only 30 I can't imagine living life like this. I don't know how to keep going. Please don't read and move, please respond. I need all your help.
|
in an earlier post that you took a medication that triggered everything. That would be huge for many sufferers who search for a cause. Your symptoms sound like others here that have Chemo Induced PN, Search CIPN and tell the story of what this medication was, Perhaps someone else has been there. Good Luck, Ken in Texas.