Hello,

I am waiting for a skin biopsy so I don't know whether or not I have SFN. However, for the last 6 months I have literally been burning head to toe all the time. It started a year ago with full blown head to toe 100/minute muscle twitching. Present symptoms: I have twitching, electrical sensations, burning, tingling, prickling. These sensations are literally 24/7, happen all the same time. I am in agony. My Dr. doesn't think this is SFN b/c I don't show clinical evidence of SFN. If it's not, what else could it be? I need to point my Dr. in the right direction (I have seen 3) and they all say nothing wrong with you, sorry I won't see you again.

Tests so far
MRI - head, neck, full back - all normal
EMG - right leg and left arm - came back with carpal tunnel in left arm
EEg - normal
Bloodwork - Ca, Mg, Potassium, glucose, iron, B12, copper, ANA, lyme, Igg, Iga, Igm, female hormones, testosterone, (some more I can't remember) - all normal
Urine - norepinephrine, cortisol - normal

What else could this be? What I have them look for? Please help. I'm only 30 I can't imagine living life like this. I don't know how to keep going. Please don't read and move, please respond. I need all your help.

in an earlier post that you took a medication that triggered everything. That would be huge for many sufferers who search for a cause. Your symptoms sound like others here that have Chemo Induced PN, Search CIPN and tell the story of what this medication was, Perhaps someone else has been there. Good Luck, Ken in Texas.

What was the trauma mentioned in this thread?
http://neurotalk.psychcentral.com/thread216927.html

the medication started the twitching ( I think but DR say no). But I had, NO burning pain,tingling, or prickling until a naturopath ran a current of electricity through me that was supposed to help my tissues expel toxins (the medication) and lead to healing.

Hi canagirl, before onset of symtoms what medication was it you took if you don't mind me asking, they think mine could have been caused by metronidazole.

Hi Ken,

I really appreciate your responses. I feel so alone and don't know where to turn. I really do need responses from everyone that I can.

Thank you so much.

Canagirl,
I think it would be helpful if you could tell your story from the beginning. I don't think anyone has enough details to be able to offer their ideas or compare to their conditions. The skin burning is consistent with SFN. That is all I can say.

Maybe someone who knows more than me about this can chime in, but my current understanding is that a skin biopsy is the only way of showing "clinical evidence" of SFN. All the other tests would be normal. Or am I misunderstanding?