Quote:
Originally Posted by xrox
I am in Canada. I am just wondering but was your SFN diagnosed via biopsy? Did they find anything unusual on a full neurological exam?
I have heard from a few ASers that have similar SFN symptoms that once you get the AS inflammation under control your SFN symptoms also improve.
Also, there is something called positional canal stenosis and this can be missed on an MRI. I have this for sure as my MRI looks identical to the ones featured in the following article. Considering my first tingling and numbness occured when I was changing a light bulb with my head tilted backward I would suspect it even more.
http://www.positionalcordcompression...treatment.html |
Hi x rox - right I have just seen my neurologist so will update you on that:
Yes I did have a skin biopsy to diagnose SFN. If you supect SFN I recommend you get it. No one has taken me seriously at all and without a diagnosis its easy to be put in the anxiety corner. I recommend you dont suggest anxiety to any of your health professionals as you are at risk of being put in anxiety corner. It isnt anxiety!
My neurologist has said that humira is connected (probably only very small amounts) to demylinating neuropathies. SFN is not that. Demylinating is in relation to brain and spinal cord apparently.
I have had brain scans and spine and neck scans the lot. There is nothing there to show lesions or demylination. I have slight degeneration on L4 and 5 but they are confident this has nothing to do with the neuropathy.
Ive just spoken about IVIG. He said I will have to go to a panel for approval and they will want firm evidence that it mught be useful in my case. He is seeking advice from the professor who took my skin biopsy.
I will have alook at your link, Thank you