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Old 03-19-2015, 11:16 AM #20
xrox xrox is offline
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Join Date: Mar 2015
Posts: 51
10 yr Member
xrox xrox is offline
Junior Member
 
Join Date: Mar 2015
Posts: 51
10 yr Member
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Quote:
Originally Posted by JoannaP79 View Post
I don't believe for one minute anxiety caused this for you. It may well exacerbate it though.
Im taking gabapentin, that takes the edge off a bit.
I'm seeing neuro today, I am asking to be considered for ivig and will pursue this until they agree.
Other than that swimming gives me temp relief - helps the AS too.
So its only symptom management really. Ive got a tens but havent tried that yet.
I also wear certain clothes now so ones light on the skin. Fashion has gone right out the window!
I will update you on meeting with the neuro today!

I don't have dry mouth or eyes either. That can be absent with sjorgens I believe. It is so much more than the dry mouth I believe.
Are you in the UK BTW? Just thinking about NHS vs I surance issues when accessing ivig.
I am in Canada. I am just wondering but was your SFN diagnosed via biopsy? Did they find anything unusual on a full neurological exam?

I have heard from a few ASers that have similar SFN symptoms that once you get the AS inflammation under control your SFN symptoms also improve.

Also, there is something called positional canal stenosis and this can be missed on an MRI. I have this for sure as my MRI looks identical to the ones featured in the following article. Considering my first tingling and numbness occured when I was changing a light bulb with my head tilted backward I would suspect it even more.

http://www.positionalcordcompression...treatment.html
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