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Originally Posted by Healthgirl
$1200 Ouch!
It was a 1.5 hour consult and he went over all my paper work.
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Yeah that is pricey... but I assume a large chunk of that is lab work. How much did the consult part cost? It is nice to get someone with a different perspective to take a lot of time with your case.
Could you refresh my memory? Did you take the Igenex test in the past and have a borderline result?
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Originally Posted by Healthgirl
He seems to be the only doctor who is curious as to why my ferritin is so low and why my copper is deficient.
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Malabsorption due to autoimmunity? Have you found any good medical literature on the ferritin and copper levels? Clearly something is going on with that whether or not it's directly related to your SFN.
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Originally Posted by Healthgirl
I must admit that I went in with the attitude of "of course this guy is going to say I have lyme with all my symptoms and go on about how flawed the CDC testing is", but yet I felt it was necessary to explore this option as no one has been able to help me.
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I totally agree with you and will probably be headed down this same road shortly. All avenues need to be explored.
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Originally Posted by Healthgirl
Lyme doc said plaquenil in conjunction with antibiotics can fight Bartonella...........I just hate medicine, but I don't know what I have to loose. I want my life back. I'm so freaking confused and have much to absorb as this was just last night that I got back from the appointment.
What do y'all think?
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I think it's also difficult sorting out if your Sjogrens disease caused SFN or if it is happening in addition to it. I hate taking any kind of medicine too, but if I were in your shoes I'd give it a shot. At least for a little while to see if you can smack down some of this potential autoimmunity and/or infection.