Yeah that is pricey... but I assume a large chunk of that is lab work. How much did the consult part cost? It is nice to get someone with a different perspective to take a lot of time with your case.

Could you refresh my memory? Did you take the Igenex test in the past and have a borderline result?

Malabsorption due to autoimmunity? Have you found any good medical literature on the ferritin and copper levels? Clearly something is going on with that whether or not it's directly related to your SFN.

I totally agree with you and will probably be headed down this same road shortly. All avenues need to be explored.

I think it's also difficult sorting out if your Sjogrens disease caused SFN or if it is happening in addition to it. I hate taking any kind of medicine too, but if I were in your shoes I'd give it a shot. At least for a little while to see if you can smack down some of this potential autoimmunity and/or infection.

No that did not include labs. Guess this guy is high in demand and he can get away with it. People in Ct speak highly of him. My aunt feels that LLMD's helped her son when no one else could when he started losing motor skills. She went to him herself when she suspected lyme after being fatigued for a year and having insomnia and she tested through igenix and she said his treatment worked. I always felt that she was going through menopause and thats what it really was, but I thought my own issue was hormonal and was way wrong so how the heck can I think I can know what she was going through?

Giving it a shot is what I might do. I can't say, "What do I have to loose?" I will be losing whatever balance of gut flora and some good bacterial friends, but if I decide to go for it I have access to professional grade probiotics and supplements through my practice so I will be as careful as I can be.

there was a poster who was here for a long time who did this treatment with anti biotics eventually and was greatly helped by it. i dont know if she was totally cured but at the least was much better off. Her name was lizajane. you can look up her old posts.

I think some people are so desperate, to see what is causing thier illness they will jump online and search online, and of course lyme,MS,parkinson is the top searches. Chronic Lyme believers will automatically assume everything is related to lyme, after they go through antibiotics course, but the llmd don't stop there. I do here that llmd , says they pay more attention to your problem, because you paid like 400-1200$ on the first visit. They have to keep you coming back, otherwise a one time payment/treatment will push them out of business really quick, they will try to say you have this or that on your blood test, that are unrelated to your supposed lyme disease, At least some of these doctors may recommend you see a specialist (rheumatologist, neurologist). I looked on yelp on LLMD/ND in my area, apparently one of them is part of the llad(a questionable organization), has some reviews that immediately confirms my suspicions: he constantly tries to push/advertise products onto you, or he is unusually resistant to any "outside doctor" consultations. Mentally, people feel better when they get some assurance from their doctor, because mental health is just as important to your overall health. I think its a good idea to go on abx to see if it will do anything, if it doesnt it probably is not going to help to continue. i have a feeling that the controversy behind chronic lyme, has become somewhat of a cult(chronic lyme believers and thier llmd).
even the doctor who discovered lyme disease, was threatened with violence for things just like this. Hopefully you can explore more options, as well. sogrens is not the only autoimmune out there that can cause PN.
lab tests outside of the llmd, will not be recognized as an official lab test. Furthermore, most of the chronic lyme patients, dont even believe in thier accuracy of thier test anyway, so it was pretty much of waste money. I think most llmd will only see if you have an IGENEX test, and will only reccommend something like igenex.

the second link is problematic, because its basically only testimonials, where is thier experiments, or tests?methods results, use of controls. when your dealing with scientific research, you must have some kind of experimentation done, such as scientific papers being published on scientific journal it seems like they were funded to say that. i think lyme and neuro issue has already been established. autoimmunity is slightly trickier,because we dont even know how most autoimmnity works, to begin with.