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Originally Posted by krmitdfrog
I know what u mean Russell. It's getting to that point for me. Know anything about the lump feeling? Gets worse when I keep my head down. Starting to feel more and more light the more work I do. I get light headed if I have to bend over and stand back up too. When I was younger, in my teens, I would ride coasters and pass out when going upside down. Anytime I went upside down I'd pass out or maybe it was blackout.
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Have you had an MRI of your brain and neck? The reason I ask is some of you symptoms sound like Chiari Malformation. Blackouts, numbness and tingling, difficulty swallowing. I would check with a neurologist. Personally, I know I feel better when I have a diagnosis. Unfortunately sometimes more than one condition is needed to cover all symptoms.
No matter what happens the support here is better than any I have ever experienced. The people here are often more educated in CRPS than many healthcare professionals. I am lucky enough to have a very supportive family but they don't really understand. However having people who are going through what you deal with everyday is invaluable.
