Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-22-2015, 09:57 AM #1
krmitdfrog krmitdfrog is offline
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Originally Posted by Russell View Post
I get worn out too easily also. I checked and no cancer. Just my CRPS affecting my lungs making the simplest of activity to make me get tired quickly. The only thing I seem to do luckily is playing piano. One handed of course...

Here's a heeling hug for all...
I know what u mean Russell. It's getting to that point for me. Know anything about the lump feeling? Gets worse when I keep my head down. Starting to feel more and more light the more work I do. I get light headed if I have to bend over and stand back up too. When I was younger, in my teens, I would ride coasters and pass out when going upside down. Anytime I went upside down I'd pass out or maybe it was blackout.
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Old 06-22-2015, 10:43 AM #2
NurseKris NurseKris is offline
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I know what u mean Russell. It's getting to that point for me. Know anything about the lump feeling? Gets worse when I keep my head down. Starting to feel more and more light the more work I do. I get light headed if I have to bend over and stand back up too. When I was younger, in my teens, I would ride coasters and pass out when going upside down. Anytime I went upside down I'd pass out or maybe it was blackout.
Have you had an MRI of your brain and neck? The reason I ask is some of you symptoms sound like Chiari Malformation. Blackouts, numbness and tingling, difficulty swallowing. I would check with a neurologist. Personally, I know I feel better when I have a diagnosis. Unfortunately sometimes more than one condition is needed to cover all symptoms.

No matter what happens the support here is better than any I have ever experienced. The people here are often more educated in CRPS than many healthcare professionals. I am lucky enough to have a very supportive family but they don't really understand. However having people who are going through what you deal with everyday is invaluable.
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Littlepaw (06-22-2015)
Old 06-22-2015, 01:14 PM #3
krmitdfrog krmitdfrog is offline
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krmitdfrog krmitdfrog is offline
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Have you had an MRI of your brain and neck? The reason I ask is some of you symptoms sound like Chiari Malformation. Blackouts, numbness and tingling, difficulty swallowing. I would check with a neurologist. Personally, I know I feel better when I have a diagnosis. Unfortunately sometimes more than one condition is needed to cover all symptoms.

No matter what happens the support here is better than any I have ever experienced. The people here are often more educated in CRPS than many healthcare professionals. I am lucky enough to have a very supportive family but they don't really understand. However having people who are going through what you deal with everyday is invaluable.
That is so very true. I just actually talked to my family about some things I was going through, and they think it is just anxiety/stress :/ I have had MRI done, and it was normal. Xrays confirmed at chiropractic office that I have stage 3 disdisc degeneration in my neck and lower back. Just made an appointment with my primary care dr. So I can see about getting set up with pm clinic here locally. In the mean time, I may try the 1% capsizin on my entire foot/ankle. I agree that this support is really awesome. I know it is helping me a ton.
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Littlepaw (06-22-2015)
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