Magnate
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
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Magnate
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
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Thanks for the input.
I'm still experiencing similar symptoms, though the severity changes considerably day to day or sometimes even hour to hour. Certain activities such as driving (which I have to do a lot of) and keyboarding (ditto) seem to ramp things up--not all the time, but often.
I did a consult with a well-respected spine neurosurgeon at Cornell who was pretty engaging as surgeons go. His biggest concern is that there is some slight weakness in some of the muscles of my right arm ennervated by the C6/C7 complex, and he did think there may be some brachial plexus issues compounding it. (He also reviewed all my previous small-fiber history.) He ordered both thoracic and lumbar MRI's to see what is going on there, though he does agree that my re-enervation post acute onset small fiber may have resulted in some weird reconnecting that doesn't correspond to most people's dermatomes; he said he's seen some C7 chest involvement in the past.
Bottom line--six weeks of intensive physical therapy with traction and then a follow-up to see if symptoms have improved; if not, and there is still weakness, a serious surgery discussion. And, of course, we'll see what the other MRI's show.
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