I'm still experiencing similar symptoms, though the severity changes considerably day to day or sometimes even hour to hour. Certain activities such as driving (which I have to do a lot of) and keyboarding (ditto) seem to ramp things up--not all the time, but often.

I did a consult with a well-respected spine neurosurgeon at Cornell who was pretty engaging as surgeons go. His biggest concern is that there is some slight weakness in some of the muscles of my right arm ennervated by the C6/C7 complex, and he did think there may be some brachial plexus issues compounding it. (He also reviewed all my previous small-fiber history.) He ordered both thoracic and lumbar MRI's to see what is going on there, though he does agree that my re-enervation post acute onset small fiber may have resulted in some weird reconnecting that doesn't correspond to most people's dermatomes; he said he's seen some C7 chest involvement in the past.

Bottom line--six weeks of intensive physical therapy with traction and then a follow-up to see if symptoms have improved; if not, and there is still weakness, a serious surgery discussion. And, of course, we'll see what the other MRI's show.

Just to add info on another possible cause for shoulder/arm pain: the MRI I mentioned in my earlier post showed that I have osteophytes (calcium nodules - associated with osteoarthritis) forming under my left AC joint which are pressing on the tendons.

They weren't visible on the x-ray but showed on the MRI - prior to the MRI consult I was convinced the pain and numbness were due to nerve entrapment in the brachial plexis area. However the numbness and muscle atrophy in the same hand has been attributed to the neuropathy.

Glenn - you mentioned cervical spine exercises for strengthening - do you by any chance have a link to any sites that show or list these exercises. Any advice would be much appreciated thanks.

I do prefer ones that not only describe the exercises but also show pictures.

Neck Exercises for Neck Pain

Video Series: Exercises for Cervical Spine Degenerative Disc Disease - Learn 4 Neck Stretches and Exercises