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Member
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Join Date: Aug 2006
Location: Southern California
Posts: 518
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Member
Join Date: Aug 2006
Location: Southern California
Posts: 518
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It's important you do some Groundwork...
Jacquelina,
Please don't take this wrong... But in my opinion you need to find yourself a new Dr. Any Dr that tells you that RSD in no big deal has no business treating you now. He also didn't think TOS was a big deal and believe me it is people can loose complete use of there arm due to nerve or vascular compression if not treated correctly. I was fortunate that I only had to travel two hours to find a TOS specialist. Others have to fly to Denver for there treatment.
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Originally Posted by wildberry2277
Please if anyone has any info let me know i dont see a TOS doctor for 3 weeks same with a neuroligist...
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I'm sorry let me correct myself are you currently waiting to see a TOS Dr for the first time or is your current TOS Dr telling you it is not a BIG deal.
"You are going to need to find yourself a PM Dr" if your Dr isn't going to refer you. My neurosurgeon had referred me to a PM Dr that was almost two hr's drive from my home. There was no way I could do that so I found my own PM doc. I knew of a large university only 20 min from my home and I called them up and did all the ground work myself. I then called my neuros office and they faxed the referral and paperwork over to them. I had also found others by researching my medical insurance and making phone calls asking how often and how many RSD patients they treated.
As for your arm turning red. I can't give you a concrete answer only your Dr can do that thru diagnostic test. That's why you need specialized test to determine your type of TOS. The redness and burning in the arm is a tell tail sign of RSD but neuropathy from TOS can also cause burning. The area that you are explaining is the pathway for the brachial plexus http://neurotalk.psychcentral.com/sh...ad.php?t=11493
The RSD forum and the TOS forum in the Sticky located in the upper left hand corner are full of information. It is so important for you to read and understand what you are going thru. On the TOS forum there is also a sticky with recommended Dr's http://neurotalk.psychcentral.com/showthread.php?t=135
I do hope that you are able to find the help you need. Neither RSD nor TOS is a problem you need to let go. They are both debilitating conditions and RSD isn't something that you want let go untreated anyone on this forum will tell you that. And the McGill Pain Index rates it the most painful form of Chronic Pain that exists today http://www.rsdhope.org/ShowPage.asp?page_id=116 So what I am saying is you need to find a PM doc that can treat you...
Please it is so important and as I said I am sorry if I am scarring you that isn't my intent but you do need to find a PM doc and a good neuro that understands and will treat your conditions.
Many Hugs and Good Luck
 & 
Dawn
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