Here something i posted a few days back in the TOS forum... It was my first real sign of RSD.... My doctor side i already had it... No i havent seen a PM doctor because i cant get anyone to listen to me... My doc said RSD was no big deall... FINDING OUT IT IS!

I need some help with this question.... I was playing cards which really upset my symptoms.... Durning the game all of a sudden a got a really burning pain inside my elbow and then up to my shoulder neck and right side of my face... and finally in to my finger... The burning turned my arm red.... and it was a terrible pain.... Has anybody every had tempture changes in their arms.... The pain is the worst today then it has been in awhile...

I am kind of freaked out... .dont really know what it could be... Visbly having it beat red compared to my other side....

Please if anyone has any info let me know i dont see a TOS doctor for 3 weeks same with a neuroligist...

Jacquelina,

Please don't take this wrong... But in my opinion you need to find yourself a new Dr. Any Dr that tells you that RSD in no big deal has no business treating you now. He also didn't think TOS was a big deal and believe me it is people can loose complete use of there arm due to nerve or vascular compression if not treated correctly. I was fortunate that I only had to travel two hours to find a TOS specialist. Others have to fly to Denver for there treatment.

Quote:

Originally Posted by wildberry2277 Please if anyone has any info let me know i dont see a TOS doctor for 3 weeks same with a neuroligist...

I'm sorry let me correct myself are you currently waiting to see a TOS Dr for the first time or is your current TOS Dr telling you it is not a BIG deal.

"You are going to need to find yourself a PM Dr" if your Dr isn't going to refer you. My neurosurgeon had referred me to a PM Dr that was almost two hr's drive from my home. There was no way I could do that so I found my own PM doc. I knew of a large university only 20 min from my home and I called them up and did all the ground work myself. I then called my neuros office and they faxed the referral and paperwork over to them. I had also found others by researching my medical insurance and making phone calls asking how often and how many RSD patients they treated.

As for your arm turning red. I can't give you a concrete answer only your Dr can do that thru diagnostic test. That's why you need specialized test to determine your type of TOS. The redness and burning in the arm is a tell tail sign of RSD but neuropathy from TOS can also cause burning. The area that you are explaining is the pathway for the brachial plexus http://neurotalk.psychcentral.com/sh...ad.php?t=11493

The RSD forum and the TOS forum in the Sticky located in the upper left hand corner are full of information. It is so important for you to read and understand what you are going thru. On the TOS forum there is also a sticky with recommended Dr's http://neurotalk.psychcentral.com/showthread.php?t=135

I do hope that you are able to find the help you need. Neither RSD nor TOS is a problem you need to let go. They are both debilitating conditions and RSD isn't something that you want let go untreated anyone on this forum will tell you that. And the McGill Pain Index rates it the most painful form of Chronic Pain that exists today http://www.rsdhope.org/ShowPage.asp?page_id=116 So what I am saying is you need to find a PM doc that can treat you...

Please it is so important and as I said I am sorry if I am scarring you that isn't my intent but you do need to find a PM doc and a good neuro that understands and will treat your conditions.

Many Hugs and Good Luck

&
Dawn

Jacquelina,

I told you in my earlier post that I lived in MN also....forgot to tell you that I live in the Twin Cities area. My Pain Clinic is located also in the Twin Cities...in fact they have quite a few office throughout the metro area. So as I said before if you'd like the name and phone # of a clinic that deals in RSD, TOS, Chronic Pain and ect...just give me a shout and I'll get it for you.

Gentle Hugs,
cjay

Cjay,

I sent you two private messages! Doctors names and numbers would be greatly appericated! I have to make a whole bunch of phone calls tomorrow and if you already have some one good with handling RSD I would love infromation!

Please contact me!

Hi Jacquelina!
I have to conquer with what Dawn said;"That any Dr. who tells you that RSD is "No BIG deal" has no business what-so ever treating you!"! I had a really awful(Doogie Houser, he was a baby) Remember him, you other guys? LOL anyway, he was a "jerk" told me that no narcotic meds. would help me with this RSD! Now, my surgeon who did the CTS refered me to a hand/ wrist specialist. OMG I love the guy!! so down to earth!! ok.. he refered me to him, as HIS pain Dr. (he refers RSD folks too) ok.. I go there to see another PMD thinking..another jerk!! No way!! this dude was so cute by the way and he was the one who took careful notes, checked me out throughly!(My old pmd just grabbed my hand to see if it was cold) said oh, my gosh.. and threw some prescription neourontin at me(they help) wanted to put me on a different anti depressent pill.. which I refused!! Now.. IMHO I would for sure get a new pain managment Dr. this was my send one and I just think he is very, very accurate and good. hang in there, post and let us all know how go's Jacquelina!! to you! Love, Desi

Wondering... when it was red was it hot to the touch too??

Any doctor that says RSD is no big deal has lost their mind!! It is not some simple thing... it's really a difficult disease to treat. I hope you can find a new better doctor!

Huge pain free hugs xxxxxxxxxxxxx