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Originally Posted by vanityfaire
It really does sound like you have it Dianna. The best way that I have had to describe the pain is its like a porcupine, electrical feeling. The burning is just that as if you had been burned. My feet now are red and swell. I have RSD and lymphodema in my left foot.
I do need to keep the medication levels up. I take neurontin 1500mg a day and hydrocodone 750 (4) day.
I tried Methodone and could not do that one, I had slurred speech and not able to get my thoughts out. It wasn't a high either it was like a delay. I felt perfectly fine. Just couldn't talk so not able to work when I was in that state. I also tried cymbalta that did not work for me.
I have had 2 nerve blocks. The first did not work and they went in and did it directly into my leg rather than the spine. That helped a lot.
I am only now hearing about the Kenatine so I didn't realize that was a treatment.
How frutstrating Huh? I almost fear when night comes and the need to try to sleep. The worse time for me.
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Yeah, nights are hard for me as well. My kids keep me going with or without pain. At night, when its quiet, I am more aware of the pain. The porcipine electrical feelings are a perfect description for my pain.
I had two ganglion nerve blocks and two trigger point injections. Cymbalta gave me TERRIBLE nightmares! It seemed like I tried neurotin or trazadone for a while but it was to hard to get up in the AM and my 3 & 5 year old dont give me any breaks in the AM! My doctor feels that the ketamine is my final hope.
I cant help wonder if my c4 buldging disk is causing all my problems. My pain is constant, but worse in different positions.
Would you do the ketamine infusion?