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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#6 | ||
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Junior Member
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It really does sound like you have it Dianna. The best way that I have had to describe the pain is its like a porcupine, electrical feeling. The burning is just that as if you had been burned. My feet now are red and swell. I have RSD and lymphodema in my left foot.
I do need to keep the medication levels up. I take neurontin 1500mg a day and hydrocodone 750 (4) day. I tried Methodone and could not do that one, I had slurred speech and not able to get my thoughts out. It wasn't a high either it was like a delay. I felt perfectly fine. Just couldn't talk so not able to work when I was in that state. I also tried cymbalta that did not work for me. I have had 2 nerve blocks. The first did not work and they went in and did it directly into my leg rather than the spine. That helped a lot. I am only now hearing about the Kenatine so I didn't realize that was a treatment. How frutstrating Huh? I almost fear when night comes and the need to try to sleep. The worse time for me. |
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