Thread: MS Hug
View Single Post
Old 01-23-2008, 03:04 AM
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default

Flygirl,

Your post got me thinking back a few years ago, before diagnosis. When I was on the river. I used to put my lifejacket on in the a.m. and tighten it right up before getting in the boat. I aways overtightened it, because as the day went on, it would loosen and I never had time to pull over and adjust it, so I eventually knotted it after buckling it so it wouldn't loosen up.

I used to get what i called lifejacket cramps. I always blamed it on having the jacket so tight. After diagnosis, when I stopped doing that kind of work, I noticed the "cramps" didn't end. I just dismissed it as muscle strain, stiffness, etc. It did eventually go away, but now I wonder if it wasn't MS hug after all!

I guess I thought it only came with spinal lesions. I was told I have no spinal lesions. I know that lesions can be hidden or at a level where they cannot be seen on MRI, but jeeeez...this freaking disease is so confusing!

Even after almost 4 years I am still not sure what IS or ISN'T MS!!

Anyway, I used to do the Valsalva Maneuver to loosen the "cramps" up...for some reason it worked for me, and I never had the "cramps" checked out because, for the most part, I was able to relieve it on my own when it happened.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote