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#10 | |||
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Magnate
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Flygirl,
Your post got me thinking back a few years ago, before diagnosis. When I was on the river. I used to put my lifejacket on in the a.m. and tighten it right up before getting in the boat. I aways overtightened it, because as the day went on, it would loosen and I never had time to pull over and adjust it, so I eventually knotted it after buckling it so it wouldn't loosen up. I used to get what i called lifejacket cramps. I always blamed it on having the jacket so tight. After diagnosis, when I stopped doing that kind of work, I noticed the "cramps" didn't end. I just dismissed it as muscle strain, stiffness, etc. It did eventually go away, but now I wonder if it wasn't MS hug after all! I guess I thought it only came with spinal lesions. I was told I have no spinal lesions. I know that lesions can be hidden or at a level where they cannot be seen on MRI, but jeeeez...this freaking disease is so confusing! Even after almost 4 years I am still not sure what IS or ISN'T MS!! ![]() Anyway, I used to do the Valsalva Maneuver to loosen the "cramps" up...for some reason it worked for me, and I never had the "cramps" checked out because, for the most part, I was able to relieve it on my own when it happened.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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