Adventures of a limbo lander.

As my neuro says now, he was sure I had ms, 95%, but now he's confused if it's that or something else. Some of my symptoms don't fit my dxs, and do seem ms-y, but who knows?

So he can't rule it out and is keeping his eyes on it.

I presented with migraines, had fatigue and some vertigo. MRI found brain lesions and I had more tests. Ruled a lot of stuff out, but was dx'd with spinal disorders (C spine) and syringomyelia (T spine) in '04.

All this time the brain lesions remain unchanged, had all the usual tests come back normal - EPs, LP, etc. My reflexes are a little off, but that could be either of my spine issues.

I lost my job right out of the gate. (Headaches, yuck)

I now have the h/a pretty much under control, but deal mostly with chronic pain and fatigue and some weird sensory symptoms. Pretty lucky, for what's up with my neck alone, much less having other stuff going on.

I've had a rough time with docs up till now - finally have a good team on board. Very happy to say that.
I'm 44, have 2 grown kids who still live at home, one adorable granddaughter who stays a couple days a week. I also have 2 rescue dogs and 4 birds. You can probably hear them screaming from where you are.





I drown them out with my guitar.

And hey, it's really great to be here. This place rocks!