I was recently diagnosed in December '07 but even that is not 100%. I presented with Transverse Myelitis in May '07 which left me with permanent buzzing in my legs. It affected my gait pretty bad and gave me severe pain in my mid-back. I has a pseudo exacerbation in Sept. '07 and finally realized I needed to take time off from my type-A job and life. The second day on disability I had my second attack of Optic Neuritis in my left eye. 5 days of high dose Solu-medrol kicked it pretty well but I am left with consistent eye pain, dry/red eyes and I get headaches now from too much tv or computer work. I have one large, old lesion that could be the cause of my migraines or have nothing to do with anything...the doc said it could have happened at birth or 5 years ago there is no way to tell...so I have no other lesions, no visible lesion on my spine but 3 abnormal bands in my CSF and an elevated IgG count.

Lately my feet have been buzzing more after doing nothing...it had changed to only buzzing with moderate activity now they buzz all the time...annoying. My eyes were super painful for about 3 weeks and now the pain has died down...so I'm thinking it's the calm before the storm and am just waiting for the next shoe to drop.

I was on Copaxone for a short bit but could not tolerate the large, burning, itching welts. I have stopped the copaxone and will start Rebif next week...sigh. Not looking forward to the flu-like side effects.

I am a classic goth girl who loves NIN, the Cure, Depeche Mode and others. I am also a non-typical So-Cal native who lives in LA with no tan and no surf board and I do not like sprouts. I drink my Martinis straight up and prefer Bombay Sapphire. Shaken not stirred.

ok, that was enough, thanks for reading this far...see you in the threads.

Hi! I'm Desinie from Pennsylvania. I'm married for 15 years to my high school sweetheart. We have a 14 year old son ( who knows everything..lol ) and a 3 year old chocolate lab named Samson. Diagnosed in 1999, but had symptoms back in 1992 that were mis-diagnosed as Lyme Disease. Been on Copaxone since October of 1999, one month after diagnosis. I've been on SSD since 2001 due to MS symptoms. I'm a nurse though and really miss working. I was a much better nurse than I am a patient.
I found out about NT from MSWorld and followed the comforting, familar faces over here. Thanks for being so welcoming to all of us, you have a really great site here! I look forward to meeting all of you!

Hi, newest newbies! Welcome to NeuroTalk!


Have a look around and feel free to jump in anywhere, the water's warm!

Am a newby here....also a crosover.( does one month count?) I guess? Newly diagnosed, RRMS. No meds. New to the internet world. New computer...not likin' my vista!!! Just a quick hey!...then I'll get back to nosing into your world....hehe.:

I was diagnosed 2 years ago with rrms. Have been doing fairly well until fatigue has been really hitting me recently. If it was not expected to burn the candle from both ends and the middle anymore it would be much easier. Looking at options to help to improve this. Just have to take the time to do it.

Adventures of a limbo lander.

As my neuro says now, he was sure I had ms, 95%, but now he's confused if it's that or something else. Some of my symptoms don't fit my dxs, and do seem ms-y, but who knows?

So he can't rule it out and is keeping his eyes on it.

I presented with migraines, had fatigue and some vertigo. MRI found brain lesions and I had more tests. Ruled a lot of stuff out, but was dx'd with spinal disorders (C spine) and syringomyelia (T spine) in '04.

All this time the brain lesions remain unchanged, had all the usual tests come back normal - EPs, LP, etc. My reflexes are a little off, but that could be either of my spine issues.

I lost my job right out of the gate. (Headaches, yuck)

I now have the h/a pretty much under control, but deal mostly with chronic pain and fatigue and some weird sensory symptoms. Pretty lucky, for what's up with my neck alone, much less having other stuff going on.

I've had a rough time with docs up till now - finally have a good team on board. Very happy to say that.
I'm 44, have 2 grown kids who still live at home, one adorable granddaughter who stays a couple days a week. I also have 2 rescue dogs and 4 birds. You can probably hear them screaming from where you are.





I drown them out with my guitar.

And hey, it's really great to be here. This place rocks!

A big NT welcome to all of you new members. It's great to have you w/us. You'll find that there is so much info here. It's amazing.

Let us know if you need help w/anything. AMN does dishes AND windows!

Welcome again!!

Awww...DM, you are so helpful!

I am also a crossover

I was dx in 2004. Started on avonex, switched to Rebif last year and got divorced. Not sure if either or both of those have to do with my feeling great! But either way I have had the best year of my MS so far.

Looking forward to chatting with you all

How did I forget to jump in over here?

Well, hi! I am another one in LimboLand. I was given the diagnosis of "Possible MS" last week after 18 months of weird symptoms. My 1st neuro was a whack job who did diddley squat to try and figure out what is wrong with me. He ASSumed it was stress and migraines (I haven't had a migraine in over a year!).

I went to a wonderful MS specialist last week and he is on the ball. Things are moving quickly now, and I hope to know what is wrong with me definitively within the next month.

I just want to know, so I can move on and quit stressing about "what ifs".

This community has been awesome and I am looking forward to getting to know you all!