You currently have three threads going, with pieces of information about your history, test results, etc. in each thread. I'm having a hard time keeping track of all the bits to the puzzle, so I thought I'd bring this posting over here:
Quote:
Originally Posted by momXseven
... At my last visit with him he was cold about this whole thing. He told me that he didn't know what was wrong with me and that he could treat some of my SX. He said he would treat the anxiety with Cymbalt and that might help my pain also. I asked about the other SX and he said he didn't know why I was getting them so he didn't know how to treat them.
I have come right out and asked if this didn't sound like MS, I even had the neuro in the ER say he thought it might be. He said it did NOT look like MS to him.
I don't think he has ever done the Evoked Potential tests on me, he tested my reflexes and had me walk a few steps and tap my thumb and index finger together but thats it. He did do the EMG on me and I passed it.
He still will not talk about the LP and the fact that the Myelin Basic Protein was high and shows that I have a brake down of the myelin or that the IgG rate indicates I may have just had a flair (which I did).
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Quote:
Originally Posted by momXseven
I got a copy of my LP results and at the bottom of the page it says "Continued on Next Page". It's just like the blood work papers from the same lab but at the end of the blood work papers it says "Last Page of Report".
I asked the neuro's nurse if there was another page and she said NO, I told her that the bottom of the page said "Continued on Next Page" and she said there wasn't another page on the LP. The nurse did say before they got the report that it would take a while that the report was very detailed and lengthy. ONE page with 19 items is detailed and lengthy!
Is there a lot of things on the LP reports? I have the Cell Count (includes 10 items) and the MS Profile (inducing 9 items) and Glucose, protein & VDRL. Is this all an LP is? I know that some have asked me how something had looked on my LP from here or MSW and it wasn't on my report so I feel like maybe there was more of the report.
If I call the lab is there any way they tell me if there was more than one page or even send it to me?
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I'm perplexed as to the reason that any doctor would even want to hold this information back, if he is.
What purpose would this serve him (and you) to try to deceive you? If the results did come back indicative of MS (or something else), why do you think he would say otherwise, and hold back this piece of information from you?
The results that you have gotten back, about your MBP levels, etc. would not be diagnostic criteria for MS. Only O-bands and MRI lesions (of a certain type), plus neurological/clinical testing . . . and he is saying they are all fine.
My neuro (and doc) do not spend much time testing me in their offices either (5 -10 min, max), when I go in for my annual visit. They KNOW what to look for in a split second.
You are in limbo, and as I said in a prior posting, they will NOT give you a dx without the tell-tale test results for MS. It is frustrating, no doubt . . . but NOTHING you do will change that.
I have a good friend who I've known for 4 yrs (who's an occasional member here too) who has virtually the same results and symptoms as you. I told her then what I've said to you too. . . you will cause yourself considerable grief if you continue to pursue this right now. There is no evidence of MS, and until there is, there is nothing any doctor can do. Unfortunately, even WHEN there is evidence, there is often very little that doctors (and medication) can do for us.
I do think it is worthwhile to get a second opinion, if only to put your mind at ease. However, as I understand your history, this may be a second opinion (had one 4 yrs ago...?), so it seems you are just going to stay in limbo for somewhat longer.
I think you are stressing way too much about something that nothing can be done about. I understand why you would, TOTALLY, but worrying is not going to change anything.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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